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Achieving justice in genomic translation : re-thinking the pathway to benefit

Author: Wylie Burke; Kelly A Edwards; Sara Goering
Publisher: Oxford : Oxford University Press, USA, 2011.
Edition/Format:   eBook : Document : EnglishView all editions and formats
Database:WorldCat
Summary:
This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce.
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Genre/Form: Electronic books
Additional Physical Format: Print version:
Burke, Wylie.
Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit.
Oxford : Oxford University Press, USA, ©2011
Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Wylie Burke; Kelly A Edwards; Sara Goering
ISBN: 9780199909742 0199909741 1283427931 9781283427937
OCLC Number: 769344036
Description: 1 online resource (223 pages)
Contents: Cover; Contents; 1. Making Good on the Promise of Genetics: Justice in Translational Science; 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo; 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter?; 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science; Commentary on the Discovery Phase of Research; 5. Early Assessment of Translational Opportunities; 6. The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing.
Responsibility: edited by Wylie Burke [and others].

Abstract:

This book examines the ethical and social issues that arise in the conduct of genetic research, from the discovery phase, through development and delivery research, to health outcomes.  Read more...

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The topics the book covers represent a pantheon of issues relating to genetic translation, from the political underpinnings to the historic uses of newborn screenings. The chapters covering prenatal Read more...

 
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