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The case for de-identifying personal health information

Author: Khaled El Emam; Anita Fineberg; Elizabeth Jonker; Canadian Institute for Health Information.
Publisher: Ottawa, Ont. : CHEO Research Institute, 2011.
Edition/Format:   eBook : Document : EnglishView all editions and formats
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Genre/Form: Electronic books
Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Khaled El Emam; Anita Fineberg; Elizabeth Jonker; Canadian Institute for Health Information.
OCLC Number: 758080350
Notes: "Please note that between pages 39-46 there are embedded interactive Flash graphs within the PDF document. You may get a warning from your PDF reader about playing these Flash objects. To use the interactive graphs you will need to click "Yes", otherwise the pages will appear blank."
"18th January 2011."
Description: 1 online resource (81 pages) : illustrations, digital file
Contents: Section 8 Public perceptions and behavior --
Section 9 Alternative methods for data access --
Section 10 Conclusions --
Section 11 Acronyms --
Section 12 References. Section 7 Unplanned but legitimate uses and disclosures: Unplanned uses by governments --
Data sharing for research purposes --
Unplanned uses and disclosures by commercial players. Section 6 Data breach notifications: Medical data breaches --
Loss of trust in custodian --
Cost of data breach notifications to custodian --
Value of health data: Financial information in the health records; Financial value of health records; Medical identity theft; Monetizing health records through extortion. Section 5 The impact of consent: Difference between consenters and non-consenters in clinical trials --
The impact of consent on observational studies: Impact on recruitment; Impact on bias; Impact on cost; Impact on time. Section 2 Permitted disclosures, consent, and de-identification --
Section 3 Uses of health information by an agent --
Section 4 Disclosing identifiable data when permitted. Section 1 Introduction: Limiting principals --
About the report --
Terminology and scope.
Responsibility: Khaled El Emam, Elizabeth Jonker, Anita Fineberg.
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