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Clinical ethics in pediatrics : a case-based textbook

Author: Douglas S Diekema; Mark R Mercurio; Mary B Adam
Publisher: Cambridge : Cambridge University Press, ©2011.
Series: Cambridge medicine (Series)
Edition/Format:   eBook : Document : EnglishView all editions and formats
Database:WorldCat
Summary:
"This volume provides a practical overview of the ethical issues arising in pediatric practice. The case-based approach grounds the bioethical concepts in real-life situations, covering a broad range of important and controversial topics, including informed consent, confidentiality, truthfulness and fidelity, ethical issues relating to perinatology and neonatology, end-of-life issues, new technologies, and problems  Read more...
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Genre/Form: Electronic books
Case studies
Case Reports
Additional Physical Format: Print version:
Clinical ethics in pediatrics.
Cambridge : Cambridge University Press, c2011
(DLC) 2011017978
(OCoLC)720560463
Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Douglas S Diekema; Mark R Mercurio; Mary B Adam
ISBN: 9781139145107 113914510X 9781139137775 1139137778 9781139141789 1139141783 9780511740336 0511740336
OCLC Number: 768131030
Description: 1 online resource (xiv, 248 p.)
Contents: Part I. Core Issues in Clinical Pediatric Ethics. 1. Pediatric decision-making: informed consent, parental permission, and child assent / Yoram Unguru --
2. Pediatric decision-making: adolescent patients / Jessica Berg --
3. Refusal of recommended treatment / Douglas S. Diekema --
4. Adolescent confidentiality / Malcolm Parker --
5. Adolescent refusals of intervention (and the non-compliant adolescent) / Maureen Kelley --
6. Family beliefs and the medical care of children / Roger Worthington and Mark R. Mercurio --
7. Fidelity and truthfulness in the pediatric setting: withholding information from children and adolescents / Christine Harrison --
8. Fidelity and truthfulness: disclosure of errors / Tom Gallagher and David Loren --
9. Requests for 'non-therapeutic' interventions in children / Anthony J. Thomas and Charlisse Caga-Anan --
Part II. Ethical Issues at the Beginning of Life: Perinatology and Neonatology. 10. Maternal-fetal conflicts / Mark R. Mercurio and Christy Cummings --
11. Fetal interventions and fetal care centers / Steven Leuthner --
12. Assisted reproductive technology, multiple births, and the welfare of the child / Jeffrey L. Ecker and Howard L. Minkoff --
13. Preimplantation and prenatal genetic testing for inherited diseases, dispositions, and traits / Jeff Botkin --
14. Decision-making in the delivery room / Mark R. Mercurio --
15. Withholding and withdrawing life-sustaining intervention from neonates / Andrew Beckstrom and David Woodrum --
16. The role of QoL assessments in the delivery room and NICU / A. Wyatt; 17. International variations in newborn care / Annie Janvier and John D. Lantos --
Part III. Ethical Issues at the End of Life in Pediatrics. 18. End-of-life care / Joel Frader and Kelly Michelson --
19. Futility / Norman Fost --
20. Advance directives and DNR orders / Jeffrey Burns --
21. Definition of death / Geoffrey Miller --
22. Physician aid in dying in children: physician-assisted death --
terminal sedation and children / Alex Kon --
23. The Groningen protocol / Eduard Verhagen --
24. Symptom management in dying children / Marcia Levetown --
Part IV. Ethical Issues Posed by Advances in Medical Technology and Science. 25. Organ transplantation and the child donor / Joel Frader and Aviva Goldberg --
26. Enhancement technologies and children / Todd Varness --
27. Cochlear implants and deaf children / Halle Salas --
28. Management of disorders of sexual differentiation / Joel Frader --
29. Sterilizing procedures in minors with cognitive disabilities / Don Brunnquell --
30. Parental requests for intervention on behalf of children with severe life-limiting conditions with poor quality of life (trisomy 13 and 18) / Ben Wilfond --
31. Genetic screening and testing / Lainie F. Ross --
32. The introduction of innovative technology in practice / John D. Lantos --
33. Human subjects research involving children / Erik D. Kodish and Valerie Blake --
Part V. Children, Public Health and Justice. 34. Resource allocation and triage in disasters and pandemics / Jeffrey Burns --
35. Parental refusals of vaccination and school vaccine mandates: balancing parental freedom, child welfare, and public health / Douglas Opel and Douglas S. Diekema --
36. Solid organ transplantation and children with developmental disabilities / David C. Magnus --
37. Special issues related to the care of orphans / Maureen Kelley --
Part VI. Special Topics in Pediatric Ethics: 38. Conflicts of interest, relationships with industry, and gifts / D. Micah Hester --
39. Training issues and learning new procedures / Armand Antommaria --
40. Boundary issues / Ian Holzman --
41. Ethics consultation and ethics committees / Denise Dudzinski --
42. Physician coverage of community events that appear to conflict with public health and professional goals: the case of physician coverage at youth boxing events / Stephanya Shear and Douglas Opel --
43. The impaired, incompetent, or unethical provider / Douglas S. Diekema --
Index.
Series Title: Cambridge medicine (Series)
Responsibility: [edited by] Douglas S. Diekema, Mark R. Mercurio, Mary B. Adam.

Abstract:

Practical overview of ethical issues arising in pediatric practice, with a case-based approach that grounds bioethical concepts in real-life situations.  Read more...

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schema:description"Part I. Core Issues in Clinical Pediatric Ethics. 1. Pediatric decision-making: informed consent, parental permission, and child assent / Yoram Unguru -- 2. Pediatric decision-making: adolescent patients / Jessica Berg -- 3. Refusal of recommended treatment / Douglas S. Diekema -- 4. Adolescent confidentiality / Malcolm Parker -- 5. Adolescent refusals of intervention (and the non-compliant adolescent) / Maureen Kelley -- 6. Family beliefs and the medical care of children / Roger Worthington and Mark R. Mercurio -- 7. Fidelity and truthfulness in the pediatric setting: withholding information from children and adolescents / Christine Harrison -- 8. Fidelity and truthfulness: disclosure of errors / Tom Gallagher and David Loren -- 9. Requests for 'non-therapeutic' interventions in children / Anthony J. Thomas and Charlisse Caga-Anan -- Part II. Ethical Issues at the Beginning of Life: Perinatology and Neonatology. 10. Maternal-fetal conflicts / Mark R. Mercurio and Christy Cummings -- 11. Fetal interventions and fetal care centers / Steven Leuthner -- 12. Assisted reproductive technology, multiple births, and the welfare of the child / Jeffrey L. Ecker and Howard L. Minkoff -- 13. Preimplantation and prenatal genetic testing for inherited diseases, dispositions, and traits / Jeff Botkin -- 14. Decision-making in the delivery room / Mark R. Mercurio -- 15. Withholding and withdrawing life-sustaining intervention from neonates / Andrew Beckstrom and David Woodrum -- 16. The role of QoL assessments in the delivery room and NICU / A. Wyatt; 17. International variations in newborn care / Annie Janvier and John D. Lantos -- Part III. Ethical Issues at the End of Life in Pediatrics. 18. End-of-life care / Joel Frader and Kelly Michelson -- 19. Futility / Norman Fost -- 20. Advance directives and DNR orders / Jeffrey Burns -- 21. Definition of death / Geoffrey Miller -- 22. Physician aid in dying in children: physician-assisted death -- terminal sedation and children / Alex Kon -- 23. The Groningen protocol / Eduard Verhagen -- 24. Symptom management in dying children / Marcia Levetown -- Part IV. Ethical Issues Posed by Advances in Medical Technology and Science. 25. Organ transplantation and the child donor / Joel Frader and Aviva Goldberg -- 26. Enhancement technologies and children / Todd Varness -- 27. Cochlear implants and deaf children / Halle Salas -- 28. Management of disorders of sexual differentiation / Joel Frader -- 29. Sterilizing procedures in minors with cognitive disabilities / Don Brunnquell -- 30. Parental requests for intervention on behalf of children with severe life-limiting conditions with poor quality of life (trisomy 13 and 18) / Ben Wilfond -- 31. Genetic screening and testing / Lainie F. Ross -- 32. The introduction of innovative technology in practice / John D. Lantos -- 33. Human subjects research involving children / Erik D. Kodish and Valerie Blake -- Part V. Children, Public Health and Justice. 34. Resource allocation and triage in disasters and pandemics / Jeffrey Burns -- 35. Parental refusals of vaccination and school vaccine mandates: balancing parental freedom, child welfare, and public health / Douglas Opel and Douglas S. Diekema -- 36. Solid organ transplantation and children with developmental disabilities / David C. Magnus -- 37. Special issues related to the care of orphans / Maureen Kelley -- Part VI. Special Topics in Pediatric Ethics: 38. Conflicts of interest, relationships with industry, and gifts / D. Micah Hester -- 39. Training issues and learning new procedures / Armand Antommaria -- 40. Boundary issues / Ian Holzman -- 41. Ethics consultation and ethics committees / Denise Dudzinski -- 42. Physician coverage of community events that appear to conflict with public health and professional goals: the case of physician coverage at youth boxing events / Stephanya Shear and Douglas Opel -- 43. The impaired, incompetent, or unethical provider / Douglas S. Diekema -- Index."
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