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Dementia activist : fighting for our rights

Author: Helga Rohra; Elisabeth Stechl; H Förstl
Publisher: London ; Philadelphia : Jessica Kingsley Publishers, 2016.
Edition/Format:   Print book : EnglishView all editions and formats
Summary:
'What's happening to me?' Successful translator and linguist Helga Rohra was understandably good with words - that is, until she found herself getting in a muddle when she spoke. She started to forget the way home, even though she could remember her address. Her confusing symptoms increased and Helga was diagnosed with dementia at age 50 - but she hasn't let herself be labelled with the usual stereotypes. With  Read more...
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Genre/Form: Autobiographies
Popular works
Personal Narratives
Document Type: Book
All Authors / Contributors: Helga Rohra; Elisabeth Stechl; H Förstl
ISBN: 9781785920714 1785920715 9781784503321 1784503320
OCLC Number: 952277177
Description: 152 pages : illustration ; 21 cm
Contents: Dedication. Introduction. 1. Before the onset. 2. Summer 2008: There's something the matter with me. 3. Summer 2008: First visit to the doctor - "Go for a walk". 4. Why is early onset dementia slow to be recognised? 5. Spring 2009: University hospital - Waiting and hoping. 6. The diagnosis - I feel as if I'm falling. 7. About Lewy Body dementia and how it has been for me. 8. Summer 2009: At rock bottom - and first aid from the Alzheimer's Society. 9. Doing battle with the bureaucrats. 10. Appointment for assessment. 11. Autumn and winter 2009: Helen Merlin - "Speaking for myself". 12. Shame or difficulty in being open about the symptoms. 13. January 2010: "THIS MAKES SENSE!" - I step out of the shadows. 14. March 2010: Thessaloniki - on my own. 15. My everyday life and how I cope with it. 16. March 2010: I am elected to the board of the Munich Alzheimer's Society. 17. Spring 2010: The media. 18. Speaker at a congress on dementia: Why many people I speak to declare that I am well. 19. July 2010: At the golf course. 20. Why it's wrong to compare people with dementia to children. 21. Things that I would like people to do when interacting with people with dementia. 22. Invisible hurdles in everyday life. 23. Conferences - Talks - Events. 24. Visibility and the "Dementia Card". 25. Mulling over my favourite topics. Acknowledgements. Afterword.
Other Titles: Aus dem Schatten treten.
Responsibility: Helga Rohra ; afterword by Dr. Elisabeth Stechl and Prof. Dr. Hans Förstl.

Abstract:

Helga Rohra turns dementia stereotypes on their heads with this candid memoir. Speaking about her diagnosis, day-to-day life and experience of advocacy, she proves that a dementia diagnosis doesn't  Read more...

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Speaks truth to power: listen, learn, ACT! -- Professor Peter Mittler, CBE, Human Rights Advisor, Dementia Alliance International Helga writes of the trauma of diagnosis, and seeking support. Yet her Read more...

 
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