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Ethical challenges of involving people with severe mental disorders in health services research : a case study from a low-income country setting

Author: Maji Hailemariam; Amy Drahota; Charlotte Hanlon
Publisher: London : SAGE Publications Ltd, 2018.
Series: SAGE Research Methods., Cases.
Edition/Format:   eBook : Document : English
Summary:
The research methods case described in this study is informed by the lead researcher's experience of conducting qualitative research involving individuals with severe and persistent mental disorders in Ethiopia. The study, conducted from 2012 to 2016, explored the barriers to accessing mental health care as experienced by those who are among the most vulnerable, underrepresented, and stigmatized segments of the  Read more...
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Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Maji Hailemariam; Amy Drahota; Charlotte Hanlon
ISBN: 9781526436221 1526436221
OCLC Number: 1023828667
Description: 1 online resource.
Series Title: SAGE Research Methods., Cases.
Responsibility: Maji Hailemariam, Amy Drahota, Charlotte Hanlon.

Abstract:

The research methods case described in this study is informed by the lead researcher's experience of conducting qualitative research involving individuals with severe and persistent mental disorders in Ethiopia. The study, conducted from 2012 to 2016, explored the barriers to accessing mental health care as experienced by those who are among the most vulnerable, underrepresented, and stigmatized segments of the society: individuals with severe mental disorders and their caregivers in rural Ethiopia. Little is known about the ethical challenges experienced by health service researchers in low-income settings who are working with vulnerable groups, such as people who lack the capacity to consent. This has likely resulted in their voices going unheard from research and, consequently, from being underrepresented in the broader discussion of the development, dissemination, and implementation of interventions for individuals with severe mental disorders. This highlights the need for finding ways to enhance narrative integrity of individuals with severe mental disorders and ensure their agency in research. This case study reports evidence from a researchers' first-hand experience of conducting research that involved individuals with severe mental disorders and their caregivers. This case study also lays out a framework on how equity in mental health services research could be improved by including caregiver permission, environmental modifications, brief educational interventions, keeping interviews brief to increase uptake, and greater involvement of people with severe mental disorders in the design and conduct of research.

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