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The ethics of research biobanking

Author: Jan Helge Solbakk; Søren Holm; Bjørn Hofmann
Publisher: Dordrecht : Springer, ©2009.
Edition/Format:   Print book : EnglishView all editions and formats
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This book investigates some of the ethical, legal and social challenges raised by research biobanking. It presents a comprehensive look at the issue of biobanking in an analogical approach and  Read more...

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Genre/Form: Online-Publikation
Material Type: Internet resource
Document Type: Book, Internet Resource
All Authors / Contributors: Jan Helge Solbakk; Søren Holm; Bjørn Hofmann
ISBN: 9780387938714 0387938710 9780387938721 0387938729
OCLC Number: 297148439
Description: xviii, 357 pages : illustrations ; 25 cm
Contents: pt. 1. Research biobanking : the traditional approach --
Consent to biobank research : one size fits all? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm --
What no one knows cannot hurt you : the limits of informed consent in the emerging world of biobanking / Arthur L. Caplan --
Users and uses of the biopolitics of consent : a study of DNA banks / Pascal Ducournau and Anne Cambon-Thomsen --
Information rights on the edge of ignorance / Anne Maria Skrikerud --
The dubious uniqueness of genetic information / Anne Maria Skrikerud --
Duties and rights of biobank participants : principled autonomy, consent, voluntariness and privacy / Lars Øystein Ursin --
Biobanking and disclosure of research results : addressing the tension between professional boundaries and moral intuition / Lynn G. Dressler --
Biobanks and our common good / Erik Christensen --
Trust, distrust and co-production : the relationship between research biobanks and donors / Pascal Ducournau and Roger Strand --
Scientific citizenship, benefit, and protection in population-based research / Vilhj́almur Árnason --
pt. 2. Research Biobanking : towards a new conceptual approach --
Mapping the language of research biobanking : an analogical approach / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm --
The use of analogical reasoning in umbilical cord blood biobanking / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm --
The Alexandria plan : creating libraries for human tissue research and therapeutic use / Laurie Zoloth --
The art of biocollections / Anne Hambro Alnæs --
The health dugnard : biobank participation as the solidary pursuit of the common good / Lars Øystein Ursin and Berge Solberg --
Embodied gifting : reflections on the role of information in biobank recruitment / Klaus Hoeyer --
Conscription to biobank research? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm --
Ownership rights in research biobanks : do we need a new king of 'biological property'? / Paula Lobato de Faria --
Legal challenges and strategies in the regulation of research biobanking / Elisabeth Rynning --
Annexation of life : the biopolitics of industrial biology / Jan Reinert Karlsen and Roger Strand --
In the ruins of Babel : should biobank regulations be harmonized / Jan Reinert Karlsen, Jan Helge Solbak, and Roger Strand.
Responsibility: Jan Helge Solbakk, Søren Holm, Bjørn Hofmann, editors.

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From the reviews:"This book is composed of articles that reflect an interdisciplinary and transnational approach to the issues surrounding research biobanking. ... The editors intend the book for Read more...

 
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