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Genetic databases : socio-ethical issues in the collection and use of DNA

Author: Richard Tutton; Oonagh Corrigan
Publisher: London ; New York : Routledge, 2004.
Edition/Format:   Print book : EnglishView all editions and formats
Summary:

Genetic Databases current regulatory frameworks for and policy debates about genetic databases and challenges the prevailing orthodoxy of

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Genre/Form: Databases
Material Type: Internet resource
Document Type: Book, Internet Resource
All Authors / Contributors: Richard Tutton; Oonagh Corrigan
ISBN: 0415316790 9780415316798 0415316804 9780415316804 9780203577929 0203577922
OCLC Number: 53324926
Description: viii, 211 pages ; 24 cm
Contents: Introduction : public participation in genetic databases / Richard Tutton and Oonagh Corrigan --
Person, property and gift : exploring languages of tissue donation to biomedical research / Richard Tutton --
Blood donation for genetic research : what can we learn from donors' narratives? / Helen Busby --
Levels and styles of participation in genetic databases : a case study of the North Cumbria Community Genetics Project / Erica Haimes and Michael Whong-Barr --
Informed consent : the contradictory ethical safeguards in pharmacogenetics / Oonagh Corrigan --
Ambiguous gifts : public anxiety, informed consent and biobanks / Klaus Hoeyer --
Abandoning informed consent : the case of genetic research in population collections / Jane Kaye --
Children's participation in genetic epidemiology : consent and control / Emma Williamson [and others] --
'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections? / Sue Weldon --
Tissue collection and the pharmaceutical industry : investigating corporate biobanks / Graham Lewis.
Responsibility: edited by Richard Tutton and Oonagh Corrigan.
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