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Genomics, cancer care & advocacy

Author: Sharon Terry; Genetic Alliance.
Publisher: Washington, DC : Genetic Alliance, ©2006.
Series: Genetic Alliance monograph series, 1
Edition/Format:   eBook : Document : Conference publication : English
Summary:
In the past several decades, oncologists and cancer researchers have come to recognize the importance of the role of advocacy organizations in cancer research and treatment. With genomics poised to become a major force in cancer care, advocacy organizations have an important role to play in traditional areas of concern such as patient education about new genomic technologies. Advocacy organizations also have the  Read more...
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Details

Material Type: Conference publication, Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Sharon Terry; Genetic Alliance.
OCLC Number: 838446057
Description: 1 online resource (1 PDF file (27 pages)) : illustrations.
Series Title: Genetic Alliance monograph series, 1
Other Titles: Genomics, cancer care, and advocacy
Responsibility: S.F. Terry [and others].

Abstract:

In the past several decades, oncologists and cancer researchers have come to recognize the importance of the role of advocacy organizations in cancer research and treatment. With genomics poised to become a major force in cancer care, advocacy organizations have an important role to play in traditional areas of concern such as patient education about new genomic technologies. Advocacy organizations also have the potential to serve as partners with clinicians, researchers, policy makers and others in developing an agenda for further research, creating guidelines for practice, and working for the passage of legislation to address problems such as genetic discrimination. Many organizations were involved in creating the Genomics, Cancer Care and Advocacy Workshop, with the sponsorship of the Genetics and Public Policy Center at John Hopkins University and Genetic Alliance. This report provides an overview of the workshop content and the proactive plan for advocacy involvement developed by participants. Participants in the Genomics and Cancer Care and Advocacy Workshop formulated a proactive plan for advocacy involvement in cancer care.

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