skip to content
Governing biobanks : understanding the interplay between law and practice Preview this item
ClosePreview this item
Checking...

Governing biobanks : understanding the interplay between law and practice

Author: Jane Kaye
Publisher: Oxford [England] ; Portland, Or. : Hart Pub., 2012.
Edition/Format:   eBook : Document : EnglishView all editions and formats
Database:WorldCat
Summary:
Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic  Read more...
Rating:

(not yet rated) 0 with reviews - Be the first.

Subjects
More like this

 

Find a copy online

Links to this item

Find a copy in the library

&AllPage.SpinnerRetrieving; Finding libraries that hold this item...

Details

Genre/Form: Electronic books
Additional Physical Format: Print version:
Governing biobanks.
Oxford [England] ; Portland, Or. : Hart Pub., 2012
(DLC) 2012392744
(OCoLC)779232495
Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Jane Kaye
ISBN: 9781847318831 1847318835 9781847318848 1847318843
OCLC Number: 802279445
Description: 1 online resource (x, 370 pages)
Contents: From an idea to a project / Jane Kaye [and others] --
Embedding biobanks in a changing context / Jane Kaye --
Mapping the regulatory space / Susan M.C. Gibbons --
Dynamic networks of practice / Catherine Heeney --
Governance in practice : patterns of awareness and engagement / Susan M.C. Gibbons and Andrew Smart --
General attitudes to governance / Susan M.C. Gibbons and Andrew Smart --
Attitudes to particular laws and governing bodies / Susan M.C. Gibbons and Andrew Smart --
Preferences for governance / Susan M.C. Gibbons and Andrew Smart --
Enacting governance : the case of access / Catherine Heeney and Andrew Smart --
Reflections on practice and governance / Jane Kaye --
Ethics and the governance of biobanks / Catherine Heeney and Michael Parker.
Responsibility: by Jane Kaye [and others].

Abstract:

Using interview data this book provides unique insights and makes recommendations about the governance of biobanking in the future.  Read more...

Reviews

User-contributed reviews
Retrieving GoodReads reviews...
Retrieving DOGObooks reviews...

Tags

Be the first.
Confirm this request

You may have already requested this item. Please select Ok if you would like to proceed with this request anyway.

Linked Data


Primary Entity

<http://www.worldcat.org/oclc/802279445> # Governing biobanks : understanding the interplay between law and practice
    a schema:CreativeWork, schema:MediaObject, schema:Book ;
    library:oclcnum "802279445" ;
    library:placeOfPublication <http://id.loc.gov/vocabulary/countries/enk> ;
    library:placeOfPublication <http://experiment.worldcat.org/entity/work/data/1083631590#Place/portland_or> ; # Portland, Or.
    library:placeOfPublication <http://experiment.worldcat.org/entity/work/data/1083631590#Place/oxford_england> ; # Oxford England
    rdfs:comment "Warning: This malformed URI has been treated as a string - 'http://images.contentreserve.com/ImageType-100/1889-1/{87D0E0D9-64B6-4B79-B65F-2AA511CCB223}Img100.jpg'" ;
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biobanks_law_and_legislation_great_britain> ; # Biobanks--Law and legislation--Great Britain
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biological_specimen_banks_legislation_&_jurisprudence> ; # Biological Specimen Banks--legislation & jurisprudence
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/government_regulation> ; # Government Regulation
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Place/england> ; # England.
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biological_specimen_banks_legislation_&_jurisprudence_england> ; # Biological Specimen Banks--legislation & jurisprudence--England
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biological_specimen_banks_ethics_england> ; # Biological Specimen Banks--ethics--England
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/public_policy> ; # Public Policy
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Place/wales> ; # Wales.
    schema:about <http://id.worldcat.org/fast/1204623> ; # Great Britain
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/databases_genetic_legislation_&_jurisprudence> ; # Databases, Genetic--legislation & jurisprudence
    schema:about <http://dewey.info/class/344.4204194/e22/> ;
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biobanks_law_and_legislation> ; # Biobanks--Law and legislation
    schema:about <http://id.worldcat.org/fast/1902538> ; # Biobanks--Law and legislation
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biological_specimen_banks_ethics> ; # Biological Specimen Banks--ethics
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/databases_genetic_ethics_england> ; # Databases, Genetic--ethics--England
    schema:about <http://id.loc.gov/authorities/subjects/sh2012002055> ; # Biobanks--Law and legislation
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/law_administrative_law_&_regulatory_practice> ; # LAW--Administrative Law & Regulatory Practice
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biobanks_management> ; # Biobanks--Management
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/databases_genetic_ethics> ; # Databases, Genetic--ethics
    schema:about <http://id.loc.gov/authorities/classification/K3611> ;
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/government_regulation_england> ; # Government Regulation--England
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/public_policy_england> ; # Public Policy--England
    schema:about <http://experiment.worldcat.org/entity/work/data/1083631590#Topic/databases_genetic_legislation_&_jurisprudence_england> ; # Databases, Genetic--legislation & jurisprudence--England
    schema:bookFormat schema:EBook ;
    schema:contributor <http://viaf.org/viaf/66417185> ; # Jane Kaye
    schema:datePublished "2012" ;
    schema:description "Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.--Back cover."@en ;
    schema:exampleOfWork <http://worldcat.org/entity/work/id/1083631590> ;
    schema:genre "Electronic books"@en ;
    schema:inLanguage "en" ;
    schema:isSimilarTo <http://www.worldcat.org/oclc/779232495> ;
    schema:name "Governing biobanks : understanding the interplay between law and practice"@en ;
    schema:productID "802279445" ;
    schema:publication <http://www.worldcat.org/title/-/oclc/802279445#PublicationEvent/oxford_england_portland_or_hart_pub_2012> ;
    schema:publisher <http://experiment.worldcat.org/entity/work/data/1083631590#Agent/hart_pub> ; # Hart Pub.
    schema:url <http://www.myilibrary.com?id=377398> ;
    schema:url <http://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&db=nlabk&AN=466612> ;
    schema:url <http://site.ebrary.com/id/10579753> ;
    schema:url <http://public.eblib.com/choice/publicfullrecord.aspx?p=1772812> ;
    schema:url "http://images.contentreserve.com/ImageType-100/1889-1/{87D0E0D9-64B6-4B79-B65F-2AA511CCB223}Img100.jpg" ;
    schema:url <https://www.overdrive.com/search?q=87D0E0D9-64B6-4B79-B65F-2AA511CCB223> ;
    schema:workExample <http://worldcat.org/isbn/9781847318831> ;
    schema:workExample <http://worldcat.org/isbn/9781847318848> ;
    wdrs:describedby <http://www.worldcat.org/title/-/oclc/802279445> ;
    .


Related Entities

<http://experiment.worldcat.org/entity/work/data/1083631590#Place/oxford_england> # Oxford England
    a schema:Place ;
    schema:name "Oxford England" ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Place/portland_or> # Portland, Or.
    a schema:Place ;
    schema:name "Portland, Or." ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biobanks_law_and_legislation> # Biobanks--Law and legislation
    a schema:Intangible ;
    schema:name "Biobanks--Law and legislation"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biobanks_law_and_legislation_great_britain> # Biobanks--Law and legislation--Great Britain
    a schema:Intangible ;
    schema:hasPart <http://id.loc.gov/authorities/subjects/sh2012002055> ; # Biobanks--Law and legislation
    schema:name "Biobanks--Law and legislation--Great Britain"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biological_specimen_banks_ethics> # Biological Specimen Banks--ethics
    a schema:Intangible ;
    schema:name "Biological Specimen Banks--ethics"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biological_specimen_banks_ethics_england> # Biological Specimen Banks--ethics--England
    a schema:Intangible ;
    schema:name "Biological Specimen Banks--ethics--England"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biological_specimen_banks_legislation_&_jurisprudence> # Biological Specimen Banks--legislation & jurisprudence
    a schema:Intangible ;
    schema:name "Biological Specimen Banks--legislation & jurisprudence"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/biological_specimen_banks_legislation_&_jurisprudence_england> # Biological Specimen Banks--legislation & jurisprudence--England
    a schema:Intangible ;
    schema:name "Biological Specimen Banks--legislation & jurisprudence--England"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/databases_genetic_ethics> # Databases, Genetic--ethics
    a schema:Intangible ;
    schema:name "Databases, Genetic--ethics"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/databases_genetic_ethics_england> # Databases, Genetic--ethics--England
    a schema:Intangible ;
    schema:name "Databases, Genetic--ethics--England"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/databases_genetic_legislation_&_jurisprudence> # Databases, Genetic--legislation & jurisprudence
    a schema:Intangible ;
    schema:name "Databases, Genetic--legislation & jurisprudence"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/databases_genetic_legislation_&_jurisprudence_england> # Databases, Genetic--legislation & jurisprudence--England
    a schema:Intangible ;
    schema:name "Databases, Genetic--legislation & jurisprudence--England"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/government_regulation> # Government Regulation
    a schema:Intangible ;
    schema:name "Government Regulation"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/government_regulation_england> # Government Regulation--England
    a schema:Intangible ;
    schema:name "Government Regulation--England"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/law_administrative_law_&_regulatory_practice> # LAW--Administrative Law & Regulatory Practice
    a schema:Intangible ;
    schema:name "LAW--Administrative Law & Regulatory Practice"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/1083631590#Topic/public_policy_england> # Public Policy--England
    a schema:Intangible ;
    schema:name "Public Policy--England"@en ;
    .

<http://id.loc.gov/authorities/subjects/sh2012002055> # Biobanks--Law and legislation
    a schema:Intangible ;
    schema:name "Biobanks--Law and legislation"@en ;
    .

<http://id.worldcat.org/fast/1204623> # Great Britain
    a schema:Place ;
    schema:name "Great Britain" ;
    .

<http://id.worldcat.org/fast/1902538> # Biobanks--Law and legislation
    a schema:Intangible ;
    schema:hasPart <http://id.loc.gov/authorities/subjects/sh2012002055> ; # Biobanks--Law and legislation
    schema:name "Biobanks--Law and legislation"@en ;
    .

<http://viaf.org/viaf/66417185> # Jane Kaye
    a schema:Person ;
    schema:birthDate "1962" ;
    schema:familyName "Kaye" ;
    schema:givenName "Jane" ;
    schema:name "Jane Kaye" ;
    .

<http://worldcat.org/isbn/9781847318831>
    a schema:ProductModel ;
    schema:isbn "1847318835" ;
    schema:isbn "9781847318831" ;
    .

<http://worldcat.org/isbn/9781847318848>
    a schema:ProductModel ;
    schema:isbn "1847318843" ;
    schema:isbn "9781847318848" ;
    .

<http://www.worldcat.org/oclc/779232495>
    a schema:CreativeWork ;
    rdfs:label "Governing biobanks." ;
    schema:description "Print version:" ;
    schema:isSimilarTo <http://www.worldcat.org/oclc/802279445> ; # Governing biobanks : understanding the interplay between law and practice
    .


Content-negotiable representations

Close Window

Please sign in to WorldCat 

Don't have an account? You can easily create a free account.