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Healthcare and big data : digital specters and phantom objects

Author: Mary F E Ebeling
Publisher: New York : Palgrave Macmillan, [2016]
Edition/Format:   Print book : EnglishView all editions and formats
Summary:

This highly original book is an ethnographic noir of how Big Data profits from patient private health information. Primarily told through a first-person noir narrative, Ebeling as a  Read more...

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Document Type: Book
All Authors / Contributors: Mary F E Ebeling
ISBN: 9781137502209 1137502207
OCLC Number: 950953335
Description: xiii, 170 pages : illustrations ; 22 cm
Contents: Dedication; Acknowledgments; Contents; List of Figures ; Chapter 1: Out of Death, a Birth; Phantom Data; A Curious Thing Comes a-Knockin'; My Marketing Baby, Born of Big Data; The Auto-ethnographic Noir; Chapter Descriptions; Notes; References; Chapter 2: The Rise of the Databased Society; An Industry You've Never Heard Of; Where Do the Data Come From?; Who Has Power over Our Data? Data Brokers Are Worse than the NSA; The Databased Society; Notes; References; Chapter 3: Privacy and Data Phantoms; The Biopolitics of Phantom Data; Lively Data and Vaporized Privacy Rights; Notes; References. Chapter 4: Coercive Consent and Digital Health Information Patient Privacy and the Elimination of Informational Consent; Networks of Disclosure Under the Three Rules; Privacy and Consent from Below; Coercive Consent in Capitalist Healthcare; Notes; References; Chapter 5: The Biopolitics of Lively Data; The Privacy Promises and Market Values of Anonymization; On the Internet, Everybody Knows You're a Patient; Ownership Defines Us: The "Value-Add" of Anonymization and How Data Ownership Is Claimed; Possession Plus Innovation Equals Ownership; Notes; References. Chapter 6: The Uncanny Lives of Data Commodities Comrades; My Body as Data Subject-Object of Biocapital; The Data Commodity Comes to Haunt Me; I Am Not a Baby; The Immaterial Gets "Real"; Notes; References; Chapter 7: The Body of Evidence; Data Paranoia; Experian Owns Us; Empathy and the Violence of "Dumb" Data; Notes; References; Chapter 8: Life After Death; The Uncanny Life of Data; From the Black Box to the Databased Society; The Noir Ending; References; Index.
Responsibility: Mary F.E. Ebeling.

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