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The inheritance : a family on the front lines of the battle against Alzheimer's disease

Author: Niki Kapsambelis
Publisher: New York : Simon & Schuster, 2017.
Edition/Format:   Print book : Biography : English : First Simon & Schuster hardcover editionView all editions and formats
Summary:
"An inspiring race against time: The courageous, hopeful story of the one family who may hold the key to finding a cure for Alzheimer's disease. Every sixty-nine seconds, someone is diagnosed with Alzheimer's disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe  Read more...
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Genre/Form: Biography
Biographies
Case studies
Popular works
Named Person: Niki Kapsambelis; Niki Kapsambelis
Material Type: Biography
Document Type: Book
All Authors / Contributors: Niki Kapsambelis
ISBN: 9781451697223 1451697228 9781451697322 1451697325
OCLC Number: 952647509
Description: xviii, 344 pages : illustrations ; 24 cm
Contents: Part one --
One The enemy within --
Two The salt of the earth --
Three Family N --
Four One in a million --
Five You are my sunshine --
Six The ghosts of Anoka --
Seven Untamed hearts --
Part two --
Eight A blameless and upright man --
Nine The fruits of persistence --
Ten Déjà vu --
Eleven When the fog rolls in --
Twelve Maldición --
Thirteen Burden of proof --
Fourteen The rise and fall of Golden Boy --
Fifteen Favorite son --
Part three --
Sixteen The Baptists and the Tauists --
Seventeen Expelled from Eden --
Eighteen Safe havens --
Nineteen A big if --
Twenty Everyone sees the power --
Twenty-one Landslide --
Twenty-two Something to shoot for --
Part four --
Twenty-three The silver tsunami --
Twenty-four The lucky ones --
Twenty-five Follow the science --
Twenty-six Like father, like son --
Twenty-seven All the cards are on the table --
Twenty-eight Coming home --
Twenty-nine Palpable momentum --
Thirty To the Moon and back --
Acknowledgments --
A timeline of discovery in Alzheimer's Disease.
Responsibility: Niki Kapsambelis.

Abstract:

"An inspiring race against time: The courageous, hopeful story of the one family who may hold the key to finding a cure for Alzheimer's disease. Every sixty-nine seconds, someone is diagnosed with Alzheimer's disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer's, an inherited genetic mutation that causes the disease in 100 percent of cases, and has a 50 percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer's research and offers the brightest hope for future treatments--and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer's through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. Their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this incredible narrative redefines courage in the face of one of the most pervasive and mysterious pandemics of our time"--

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