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Life to be lived : challenges and choices for patients and carers in life-threatening illnesses

Author: Catherine Proot; Michael Yorke
Publisher: Oxford, United Kingdom : Oxford University Press, 2014.
Edition/Format:   Print book : English : First editionView all editions and formats
Summary:

Life to be Lived examines the process of adjustment that patients and their families go through when they face the end of life. Personal research and case-based examples provide a candid look at the  Read more...

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Document Type: Book
All Authors / Contributors: Catherine Proot; Michael Yorke
ISBN: 9780199685011 0199685010
OCLC Number: 863691493
Description: xv, 160 pages ; 24 cm
Contents: Pt. 1 The patient experience --
1. The challenge of illness and pain --
Help me to live, not to stop dying --
Pain --
Curing and healing --
Stress provoked by treatments --
Psychological needs in treatment --
2. All may not be lost --
Valuing patients as people --
Some personal sources of strength --
Absorbing interests --
Relationship and communication --
Supportive and/or challenging characteristics --
3. Trials and adjustment --
Inner turmoil --
A cancer journey? --
Longing for normality and yearning for safety --
A network of support --
4. Towards a changed outlook --
The part of life one has not lived --
Discovering meaning --
A sense of achievement --
Recognising one's identity and status --
pt. 2 The impact on family carers --
5. Demands on the family --
Diagnosis and its demands --
Logistics --
Finance --
Teamwork --
6. Lives taken over --
Changing experience of time --
Priorities and decision making --
The reality of unpredictability --
7. Coping with change --
Denial and overprotection --
Interdependence and mutual impact --
Facing a new future --
8. Some personal consequences for the carer --
Fatigue and self-neglect --
Guilt --
Loss --
Rewards --
pt. 3 The professional carers and their roles --
9. Challenges for the professional carer --
Patient-centred care --
Finding a common language --
Creating and holding a safe space --
Flexibility in approach and response --
Coping with a backlog of grief --
Taking care of themselves --
10. The power and limitations of words --
Beyond words ... metaphor and symbol --
The metaphorical language of rituals --
Beyond communication, encounter --
11. Talking with patients --
Breaking bad news --
Sharing information --
Helping people to be heard --
Talking about illness in the family --
12. Chaplaincy and spiritual care --
The role of the chaplain --
Caution not to impose --
Spiritual care as giving meaning --
Regrets and reparation --
Needs, spiritual and/or religious --
Overlap of roles --
Death and dying --
pt. 4 Boundaries and resources --
13. Blurred boundaries --
Expectations and projections --
Shared responsibility --
Individual and institution --
Information and self-disclosure --
The challenge of visiting the dying --
14.A wealth of resources --
From being the subject of suffering to an observer of pain --
Professional and peer support --
Hands-on involvement --
Ways to express feelings and find new meaning --
Intimacy --
Acceptance --
pt. 5 The next step --
15. The next step? --
The last great adventure --
Grief and bereavement --
In conclusion.
Responsibility: Catherine Proot and Michael Yorke.

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This book is about the suffering associated with life-threateneing illness, how some patients and their families seem to manage better, and how good holistic care (with an emphasis on the spiritual Read more...

 
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