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Listen : my child has a lot of living to do : the partnership between parents and professionals in caring for children with life-threatening conditions

Author: J D Baum; Frances Dominica, Sister.; Robert N Woodward
Publisher: Oxford [England] ; New York : Oxford University Press, 1990.
Series: Oxford medical publications
Edition/Format:   Print book : EnglishView all editions and formats
Summary:

The families of children with debilitating and fatal diseases have, whatever the medical details of each case, certain needs in common. The purpose of this book is to make carers aware of and  Read more...

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Genre/Form: Personal Narratives
Material Type: Internet resource
Document Type: Book, Internet Resource
All Authors / Contributors: J D Baum; Frances Dominica, Sister.; Robert N Woodward
ISBN: 0192618989 9780192618986 0192619616 9780192619617
OCLC Number: 21373759
Notes: "Published in association with the Institute of Child Health, Bristol."
Description: xviii, 192 pages, [1] leaf of plates : illustrations (1 color) ; 23 cm.
Contents: Part 1 Introduction: hospices - a philosophy of care. Part 2 Personal reflections and domiciliary care: the CLIC Trust; malignant disease in children - the view of a general practitioner and parent; domiciliary nursing care; the Rainbow Trust - a domiciliary crisis service; domiciliary symptom control. Part 3 Children's respite hospice care: Helen House; Martin House; Acorns; an analysis of respite hospice care for children. Part 4 Specialist organ/system failure and parent self-help groups: children with life-threatening congenital heart disease; when a baby dies; children with AIDS; a social work service for cystic fibrosis families; the society for Mucopolysaccharide Disease and parent self-help groups. Part 5 Education: special education for children with life-threatening diseases; the Macmillan Educational Centre - a resource for professionals caring for dying children. Part 6 Bereavement: The Alder Centre - counselling for all those affected by the death of a child; The Compassionate Friends - mutual support by bereaved families. Part 7 Overview of needs and services: towards a comprehensive system of care for dying children and families - key issues. Conculsion: the way forward.
Series Title: Oxford medical publications
Responsibility: edited by J.D. Baum, Frances Dominica, and Robert N. Woodward.
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