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Living with HIV : experiment in courage

Author: Mary Elizabeth O'Brien
Publisher: New York : Auburn House, 1992.
Edition/Format:   Book : English
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Document Type: Book
All Authors / Contributors: Mary Elizabeth O'Brien
ISBN: 0865690405 9780865690400 0865692033 9780865692039
OCLC Number: 24913795
Notes: "A New England healthcare assembly book."
Description: xix, 222 p. ; 24 cm.
Contents: Foreword / Peter Hawley --
1. The World of HIV Infection. HIV Infection: A Contemporary Health Care Challenge. The Study Problem: Adaptation to Living with HIV Infection over Time. The Research: Coping Response in HIV Infection. Media Influence on the Study Group: Medical Milestones. Overview --
2. The Study Participants: Choosing to Live with HIV. The Study Group--A Demographic, Physical, and Psychosocial Profile. Relationships with Significant Others. "Making Connections" Relationships with Professional Caregivers. "I Need Them to Know" Participation in Research. "The Responsibility to Risk" Uncertainty of the Future. "Pressed for Time" Modification of Life Goals. "Stopping to Smell the Roses" Religion and Spirituality. "Leaning on the Everlasting Arms" The Women: A Small Subgroup. Prologue: "It's Positive, Isn't It?"; A Woman's Perspective --
3. The Families: The Ties that Bind. The Significant Others. The Partners. "Making Each Moment Count" The Parents and Kin. "God Was Crying with Me" The Friends: The Gay Community. "They're Really Family Now" The Support Groups. "Learning to Hug" Family Coping with Advanced HIV. "Celebrating the Small Victories" Family Bereavement. "Making the Quilt Panel" Family Coping Styles in HIV Infection. The Involved Family; the Marginal Family; the Disenchanted Family; and the Distanced Family --
4. The Professional Caregivers. Characteristics of the HIV/AIDS Caregivers. The Physician in HIV Care. "Guerrilla Warfare" The Nurse in HIV Care. "A Special Kind of Love" The Social Worker in HIV Services. "Letting Down the Barriers" The Pastor in Ministry to Persons with HIV. "Holding a Sacredness" The Volunteer in HIV Care: The "Buddies" "I'm Not Mrs. Foley" Caregiver Stress and Coping. "Too Many People I Care About Die" The Rewards. "Walking in Privileged Places" --
5. Early Adaptation to HIV. The Diagnosis. "The First Year Is the Hardest" Stigma. "The Red Tag" Disclosure. "Coming Out about HIV" Stresses of Early Adaptation. Anxiety and Depression. "The Dark Days" Anger and Denial. "Why Me, God?" Loneliness. "It's Only Your Disease" Intimacy and Sexual Functioning. "Making Adjustments" Initiating a Treatment Regimen. "A Hard Step to Take" Reasoned versus Ritual Compliance. "Not Written in Stone" Sickness-Wellness Self-Perception Continuum. "Planning to Live" --
6. The Survivors: A Typology of Coping Styles in Living with HIV. The Survivors. "Winning the Territory" The Well Survivor Physical Profile. The Well Survivor Psychosocial Profile. Physical Changes over Time. The Infamous T4's. Dementia. T-Cell Count. Psychosocial Changes over Time. "Making Accommodations" HIV-Positive Friends. "A Sense of Camaraderie" Work. "A Stress-Reducing Thing" Economic Impact of HIV. "Robbing Peter" Social Activities. "Protecting Immune Systems" Secondary Gain. "Making Lemonade" A Typology of Coping Styles in Living with HIV. Negotiating, Collaborating, Participating, Distancing, and Free-Lancing --
7. Coping With Death and Bereavement. The Bereaved Partners. Fear of Dying. "It's the Getting There" Fear of Not Dying. "The Long Goodbye" Suicidal Ideation. "Life Is Too Complicated" The "Small" Deaths. "HIV Milestones" Friends' Deaths. "Bereavement Overload" The Death Experience. "Permission to Die" Planning the Funeral. "I Want a Big Party" The Funeral. "Observing the Proper Rites" The Bereavement Experience. "Driving the Bus of Grief" Social Support in Bereavement. "A Hug of Compassion" Emotional Impact of Bereavement. "A Piece of Porcelain" Coping Response. "I Know I'm Healing" Mediating Factors in HIV-Related Bereavement --
Summary: Experiment in Courage.
Responsibility: Mary Elizabeth O'Brien ; foreword by Peter Hawley.

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