skip to content
Mercies in disguise : a story of hope, a family's genetic destiny, and the science that rescued them Preview this item
ClosePreview this item
Checking...

Mercies in disguise : a story of hope, a family's genetic destiny, and the science that rescued them

Author: Gina Bari Kolata
Publisher: New York : St. Martin's Press, 2017.
Edition/Format:   Print book : English : First editionView all editions and formats
Summary:
"The phone rings. The doctor from California is on the line. "Are you ready Amanda?" The two people Amanda Baxley loves the most had begged her not to be tested-at least, not now. But she had to find out. If your family carried a mutated gene that foretold a brutal illness and you were offered the chance to find out if you'd inherited it, would you do it? Would you walk toward the problem, bravely accepting whatever  Read more...
Rating:

(not yet rated) 0 with reviews - Be the first.

Subjects
More like this

 

Find a copy in the library

&AllPage.SpinnerRetrieving; Finding libraries that hold this item...

Details

Document Type: Book
All Authors / Contributors: Gina Bari Kolata
ISBN: 9781250064349 1250064341
OCLC Number: 966082972
Notes: Includes index.
Description: viii, 262 pages ; 22 cm
Contents: Part I: A disease. The prophecy --
"No goddamn bastard on earth has ever seen a disease like this thing" --
Revelation --
An uncertain inheritance --
Truth like science fiction --
Birthright --
Insomnia --
Naming the problem --
No return --
Tested --
Part II: Amanda Baxley: the next generation. A life transformed --
Options --
A foreign land --
The envelope --
Of two minds --
A unique way --
"We have no other options" --
Prescription fertility ; New lives --
Carrying forth.
Responsibility: Gina Kolata.

Abstract:

A work of narrative nonfiction in the tradition of the The Immortal Life of Henrietta Lacks, Mercies in Disguise tells the story of a family that took matters into its own hands when medicine could  Read more...

Reviews

Editorial reviews

Publisher Synopsis

"[Kolata's] book recalls two other classic tales of medical anthropology, Rebecca Skloot's The Immortal Life of Henrietta Lacks and Anne Fadiman's The Spirit Catches You and You Fall Down." --The Read more...

 
User-contributed reviews
Retrieving GoodReads reviews...
Retrieving DOGObooks reviews...

Tags

Be the first.
Confirm this request

You may have already requested this item. Please select Ok if you would like to proceed with this request anyway.

Linked Data


Primary Entity

<http://www.worldcat.org/oclc/966082972> # Mercies in disguise : a story of hope, a family's genetic destiny, and the science that rescued them
    a schema:CreativeWork, schema:Book ;
    library:oclcnum "966082972" ;
    library:placeOfPublication <http://id.loc.gov/vocabulary/countries/nyu> ;
    schema:about <http://experiment.worldcat.org/entity/work/data/3992238160#Topic/medical_genetics> ; # MEDICAL / Genetics
    schema:about <http://dewey.info/class/616.042/e23/> ;
    schema:about <http://experiment.worldcat.org/entity/work/data/3992238160#Topic/health_&_fitness_diseases_genetic> ; # HEALTH & FITNESS / Diseases / Genetic
    schema:about <http://experiment.worldcat.org/entity/work/data/3992238160#Topic/prion_diseases_genetics> ; # Prion Diseases--genetics
    schema:about <http://experiment.worldcat.org/entity/work/data/3992238160#Topic/genetic_disorders> ; # Genetic disorders
    schema:about <http://experiment.worldcat.org/entity/work/data/3992238160#Topic/biography_&_autobiography_medical> ; # BIOGRAPHY & AUTOBIOGRAPHY / Medical
    schema:about <http://experiment.worldcat.org/entity/work/data/3992238160#Topic/genetic_screening_moral_and_ethical_aspects> ; # Genetic screening--Moral and ethical aspects
    schema:about <http://experiment.worldcat.org/entity/work/data/3992238160#Topic/science_life_sciences_genetics_&_genomics> ; # SCIENCE / Life Sciences / Genetics & Genomics
    schema:author <http://experiment.worldcat.org/entity/work/data/3992238160#Person/kolata_gina_bari_1948> ; # Gina Bari Kolata
    schema:bookEdition "First edition." ;
    schema:bookFormat bgn:PrintBook ;
    schema:datePublished "2017" ;
    schema:description "Part I: A disease. The prophecy -- "No goddamn bastard on earth has ever seen a disease like this thing" -- Revelation -- An uncertain inheritance -- Truth like science fiction -- Birthright -- Insomnia -- Naming the problem -- No return -- Tested -- Part II: Amanda Baxley: the next generation. A life transformed -- Options -- A foreign land -- The envelope -- Of two minds -- A unique way -- "We have no other options" -- Prescription fertility ; New lives -- Carrying forth."@en ;
    schema:description ""The phone rings. The doctor from California is on the line. "Are you ready Amanda?" The two people Amanda Baxley loves the most had begged her not to be tested-at least, not now. But she had to find out. If your family carried a mutated gene that foretold a brutal illness and you were offered the chance to find out if you'd inherited it, would you do it? Would you walk toward the problem, bravely accepting whatever answer came your way? Or would you avoid the potential bad news as long as possible? In Mercies in Disguise, acclaimed New York Times science reporter and bestselling author Gina Kolata tells the story of the Baxleys, an almost archetypal family in a small town in South Carolina. A proud and determined clan, many of them doctors, they are struck one by one with an inscrutable illness. They finally discover the cause of the disease after a remarkable sequence of events that many saw as providential. Meanwhile, science, progressing for a half a century along a parallel track, had handed the Baxleys a resolution-not a cure, but a blood test that would reveal who had the gene for the disease and who did not. And science would offer another dilemma-fertility specialists had created a way to spare the children through an expensive process. A work of narrative nonfiction in the tradition of the The Immortal Life of Henrietta Lacks, Mercies in Disguise is the story of a family that took matters into its own hands when the medical world abandoned them. It's a story of a family that had to deal with unspeakable tragedy and yet did not allow it to tear them apart. And it is the story of a young woman-Amanda Baxley-who faced the future head on, determined to find a way to disrupt her family's destiny."--"@en ;
    schema:exampleOfWork <http://worldcat.org/entity/work/id/3992238160> ;
    schema:inLanguage "en" ;
    schema:name "Mercies in disguise : a story of hope, a family's genetic destiny, and the science that rescued them"@en ;
    schema:productID "966082972" ;
    schema:workExample <http://worldcat.org/isbn/9781250064349> ;
    wdrs:describedby <http://www.worldcat.org/title/-/oclc/966082972> ;
    .


Related Entities

<http://experiment.worldcat.org/entity/work/data/3992238160#Person/kolata_gina_bari_1948> # Gina Bari Kolata
    a schema:Person ;
    schema:birthDate "1948" ;
    schema:familyName "Kolata" ;
    schema:givenName "Gina Bari" ;
    schema:name "Gina Bari Kolata" ;
    .

<http://experiment.worldcat.org/entity/work/data/3992238160#Topic/biography_&_autobiography_medical> # BIOGRAPHY & AUTOBIOGRAPHY / Medical
    a schema:Intangible ;
    schema:name "BIOGRAPHY & AUTOBIOGRAPHY / Medical"@en ;
    schema:name "BIOGRAPHY & AUTOBIOGRAPHY--Medical"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/3992238160#Topic/genetic_disorders> # Genetic disorders
    a schema:Intangible ;
    schema:name "Genetic disorders"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/3992238160#Topic/genetic_screening_moral_and_ethical_aspects> # Genetic screening--Moral and ethical aspects
    a schema:Intangible ;
    schema:name "Genetic screening--Moral and ethical aspects"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/3992238160#Topic/health_&_fitness_diseases_genetic> # HEALTH & FITNESS / Diseases / Genetic
    a schema:Intangible ;
    schema:name "HEALTH & FITNESS / Diseases / Genetic"@en ;
    schema:name "HEALTH & FITNESS--Diseases--Genetic"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/3992238160#Topic/medical_genetics> # MEDICAL / Genetics
    a schema:Intangible ;
    schema:name "MEDICAL / Genetics"@en ;
    schema:name "Medical genetics"@en ;
    schema:name "MEDICAL--Genetics"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/3992238160#Topic/prion_diseases_genetics> # Prion Diseases--genetics
    a schema:Intangible ;
    schema:name "Prion Diseases--genetics"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/3992238160#Topic/science_life_sciences_genetics_&_genomics> # SCIENCE / Life Sciences / Genetics & Genomics
    a schema:Intangible ;
    schema:name "SCIENCE / Life Sciences / Genetics & Genomics"@en ;
    schema:name "SCIENCE--Life Sciences--Genetics & Genomics"@en ;
    .

<http://worldcat.org/isbn/9781250064349>
    a schema:ProductModel ;
    schema:isbn "1250064341" ;
    schema:isbn "9781250064349" ;
    .

<http://www.worldcat.org/title/-/oclc/966082972>
    a genont:InformationResource, genont:ContentTypeGenericResource ;
    schema:about <http://www.worldcat.org/oclc/966082972> ; # Mercies in disguise : a story of hope, a family's genetic destiny, and the science that rescued them
    schema:dateModified "2017-10-07" ;
    void:inDataset <http://purl.oclc.org/dataset/WorldCat> ;
    .


Content-negotiable representations

Close Window

Please sign in to WorldCat 

Don't have an account? You can easily create a free account.