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Muscular dystrophy sourcebook : basic consumer information about congenital, childhood-onset, and adult-onset forms of muscular dystrophy ...

Author: Joyce Brennfleck Shannon
Publisher: Detroit, MI : Omnigraphics, Inc., ©2004.
Series: Health reference series.
Edition/Format:   Print book : English : 1st ed
Database:WorldCat
Summary:
"This Sourcebook provides health information about childhood-onset and adult-onset muscular dystrophies, including congenital, Duchenne, Becker, Emery-Dreifuss, distal, limb-girdle, facioscapulohumeral, myotonic, and ophthalmoplegic muscular dystrophy. Readers will learn about the causes, diagnosis, treatment, and management of muscular dystrophy. Tips for parenting children with muscular dystrophy and for home care  Read more...
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Genre/Form: Popular works
Resource Guides
Ouvrages de vulgarisation
Document Type: Book
All Authors / Contributors: Joyce Brennfleck Shannon
ISBN: 078080676X 9780780806764
OCLC Number: 56733607
Notes: Includes index.
Description: xiii, 577 pages : illustrations ; 23 cm.
Contents: pt. I. Overview of muscular dystrophy --
Ch. 1. What are muscular dystrophies? --
Ch. 2. Myopathies : diseases of the muscles --
Ch. 3. Metabolic diseases of the muscles --
Ch. 4. Myositis : inflammatory diseases of the muscles --
pt. II. Congenital and childhood-onset muscular dystrophies --
Ch. 5. Congenital muscular dystrophy --
Ch. 6. Duchenne muscular dystrophy --
Ch. 7. Becker muscular dystrophy --
Ch. 8. Emery-Dreifuss muscular dystrophy --
pt. III. Adult-onset muscular dystrophies --
Ch. 9. Distal muscular dystrophy --
Ch. 10. Facioscapulohumeral muscular dystrophy (FSHD) --
Ch. 11. Limb-girdle muscular dystrophy --
Ch. 12. Myotonic muscular dystrophy --
Ch. 13. Ophthalmoplegic muscular dystrophy --
pt. IV. Diagnostic tests --
Ch. 14. Accurate and affordable diagnosis of Duchenne muscular dystrophy --
Ch. 15. New test for myotonic muscular dystrophy --
Ch. 16. Creatine kinase test --
Ch. 17. Muscle biopsy --
Ch. 18. Electromyography (EMG) --
Ch. 19. Gene testing --
pt. V. Treatment and management of muscular dystrophies and related concerns --
Ch. 20. Osteoporosis : a serious, but manageable effect of muscular dystrophy --
Ch. 21. The heart is a muscle, too : cardiac problems in muscular diseases --
Ch. 22. Anesthesia risks with muscular dystrophy --
Ch. 23. Inflammation in neuromuscular disease --
Ch. 24. Progress in treatments for muscular dystrophy --
Ch. 25. Physical therapy : flexibility, fitness, and fun --
Ch. 26. Managing breathing difficulties --
Ch. 27. Pain control and neuromuscular disease --
Ch. 28. Treating scoliosis in muscular dystrophy --
Ch. 29. Achilles tendon release --
Ch. 30. Treatment for Duchenne muscular dystrophy --
pt. VI. Care and management of muscular dystrophy at home --
Ch. 31. Handling disability --
Ch. 32. Home adaptations for living with muscular dystrophy --
Ch. 33. 101 hints to help patients with muscular dystrophy --
Ch. 34. Wheelchairs for children and adults with muscular dystrophy --
Ch. 35. Home health care --
Ch. 36. Feeding tubes --
Ch. 37. Managing toileting and hydration --
pt. VII. Parenting children with muscular dystrophy --
Ch. 38. You are not alone : dealing with a muscular dystrophy diagnosis --
Ch. 39. Discussing muscular dystrophy with family and friends --
Ch. 40. Daily life with muscular dystrophy --
Ch. 41. Age and mobility stages --
Ch. 42. Education rights and responsibilities of parents of children with muscular dystrophy --
Ch. 43. Estate planning issues when parents have a disabled child --
pt. VIII. Additional information --
Ch. 44. Glossary of important muscular dystrophy terms --
Ch. 45. Directory of organizations with muscular dystrophy information --
Ch. 46. Directory of on-line providers of information and equipment for people with muscular dystrophy.
Series Title: Health reference series.
Responsibility: edited by Joyce Brennfleck Shannon,
More information:

Abstract:

"This Sourcebook provides health information about childhood-onset and adult-onset muscular dystrophies, including congenital, Duchenne, Becker, Emery-Dreifuss, distal, limb-girdle, facioscapulohumeral, myotonic, and ophthalmoplegic muscular dystrophy. Readers will learn about the causes, diagnosis, treatment, and management of muscular dystrophy. Tips for parenting children with muscular dystrophy and for home care are also included, along with a glossary and directories of additional resources."--Jacket.

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