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The Official Patient's Sourcebook on Usher Syndrome.

Author: James N Parker; Philip M Parker
Publisher: San Diego : ICON Group International Inc., 2004.
Edition/Format:   eBook : Document : EnglishView all editions and formats
Database:WorldCat
Summary:
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to usher syndrome (also Hereditary Deafness-Retinitis Pigmentosa; Retinitis Pigmentosa and  Read more...
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Genre/Form: Electronic books
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Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: James N Parker; Philip M Parker
ISBN: 9780597842030 0597842035
OCLC Number: 437065543
Description: 1 online resource (216 pages)
Contents: Introduction; PART I: THE ESSENTIALS; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; PART III. APPENDICES; ONLINE GLOSSARIES; USHER SYNDROME GLOSSARY; INDEX.

Abstract:

This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to usher syndrome (also Hereditary Deafness-Retinitis Pigmentosa; Retinitis Pigmentosa and Congenital Deafness), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from.

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