skip to content
An ordinary day : kids with rare genetic conditions Preview this item
ClosePreview this item
Checking...

An ordinary day : kids with rare genetic conditions

Author: Karen Haberberg
Publisher: Brooklyn, NY : powerHouse Books, 2017. ©2017
Edition/Format:   Print book : English : First editionView all editions and formats
Summary:
An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost. 1 in 10 Americans are living with a rare genetic condition. The conditions that rule the lives of these families are often overlooked by society, but for millions of people it is a matter of foremost priority. This book sheds an important and
Rating:

(not yet rated) 0 with reviews - Be the first.

Subjects
More like this

 

Find a copy in the library

&AllPage.SpinnerRetrieving; Finding libraries that hold this item...

Details

Genre/Form: Personal narratives
Pictorial works
Document Type: Book
All Authors / Contributors: Karen Haberberg
ISBN: 1576878619 9781576878613
OCLC Number: 972243115
Notes: Includes index.
Description: 175 pages : illustrations (chiefly color) ; 24 x 32 cm
Other Titles: Photographs.
Responsibility: Karen Haberberg ; photo editor, Robert Peacock.

Abstract:

An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost. 1 in 10 Americans are living with a rare genetic condition. The conditions that rule the lives of these families are often overlooked by society, but for millions of people it is a matter of foremost priority. This book sheds an important and compassionate light on these existences.

Life often presents challenges that seem insurmountable. Children are not exempt from this, but often through their innocence and will we can find inspiration and hope. An Ordinary Day displays unforgettable photographs set against intimate conversations, documenting the lives of 27 children living with rare genetic conditions. Readers will fall in love with these children, share in their struggles and victories, and celebrate the life-affirming spirit captured in every image. The book invites us to connect with kids like Ethan, a nonverbal 7-year-old who learns to sign to communicate his needs, 5-year-old Madison who has taken her first steps after years of crawling, and Jonathan, a 9-year-old boy who finally learns to eat with a spoon after many failed trials. Tasks often taken for granted, are profound triumphs for children afflicted with rare genetic conditions. The every day moments captured in An Ordinary Day inspire awareness and empathy, while highlighting the commonalities between families with rare genetic conditions, and more deeply between us all. Poignant and revelatory, An Ordinary Day illuminates what it means to be a family. -- Publisher description

Reviews

User-contributed reviews
Retrieving GoodReads reviews...
Retrieving DOGObooks reviews...

Tags

Be the first.
Confirm this request

You may have already requested this item. Please select Ok if you would like to proceed with this request anyway.

Linked Data


Primary Entity

<http://www.worldcat.org/oclc/972243115> # An ordinary day : kids with rare genetic conditions
    a schema:Book, schema:CreativeWork ;
    library:oclcnum "972243115" ;
    library:placeOfPublication <http://id.loc.gov/vocabulary/countries/nyu> ;
    schema:about <http://experiment.worldcat.org/entity/work/data/4764498395#Topic/genetic_disorders_in_children_patients> ; # Genetic disorders in children--Patients
    schema:about <http://experiment.worldcat.org/entity/work/data/4764498395#Topic/portrait_photography> ; # Portrait photography
    schema:about <http://experiment.worldcat.org/entity/work/data/4764498395#Topic/photography_artistic> ; # Photography, Artistic
    schema:about <http://experiment.worldcat.org/entity/work/data/4764498395#Topic/rare_diseases> ; # Rare diseases
    schema:about <http://dewey.info/class/779.2092/e23/> ;
    schema:about <http://experiment.worldcat.org/entity/work/data/4764498395#Topic/parents_of_children_with_disabilities> ; # Parents of children with disabilities
    schema:about <http://experiment.worldcat.org/entity/work/data/4764498395#Topic/genetic_disorders_in_children> ; # Genetic disorders in children
    schema:about <http://experiment.worldcat.org/entity/work/data/4764498395#Topic/children_with_disabilities> ; # Children with disabilities
    schema:about <http://experiment.worldcat.org/entity/work/data/4764498395#Topic/genetic_disorders_in_children_patients_family_relationships> ; # Genetic disorders in children--Patients--Family relationships
    schema:author <http://experiment.worldcat.org/entity/work/data/4764498395#Person/haberberg_karen> ; # Karen Haberberg
    schema:bookEdition "First edition." ;
    schema:bookFormat bgn:PrintBook ;
    schema:creator <http://experiment.worldcat.org/entity/work/data/4764498395#Person/haberberg_karen> ; # Karen Haberberg
    schema:datePublished "2017" ;
    schema:description "An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost. 1 in 10 Americans are living with a rare genetic condition. The conditions that rule the lives of these families are often overlooked by society, but for millions of people it is a matter of foremost priority. This book sheds an important and compassionate light on these existences."@en ;
    schema:description "Life often presents challenges that seem insurmountable. Children are not exempt from this, but often through their innocence and will we can find inspiration and hope. An Ordinary Day displays unforgettable photographs set against intimate conversations, documenting the lives of 27 children living with rare genetic conditions. Readers will fall in love with these children, share in their struggles and victories, and celebrate the life-affirming spirit captured in every image. The book invites us to connect with kids like Ethan, a nonverbal 7-year-old who learns to sign to communicate his needs, 5-year-old Madison who has taken her first steps after years of crawling, and Jonathan, a 9-year-old boy who finally learns to eat with a spoon after many failed trials. Tasks often taken for granted, are profound triumphs for children afflicted with rare genetic conditions. The every day moments captured in An Ordinary Day inspire awareness and empathy, while highlighting the commonalities between families with rare genetic conditions, and more deeply between us all. Poignant and revelatory, An Ordinary Day illuminates what it means to be a family. -- Publisher description"@en ;
    schema:exampleOfWork <http://worldcat.org/entity/work/id/4764498395> ; # Photographs.
    schema:genre "Personal narratives"@en ;
    schema:genre "Pictorial works"@en ;
    schema:inLanguage "en" ;
    schema:name "An ordinary day : kids with rare genetic conditions"@en ;
    schema:productID "972243115" ;
    schema:workExample <http://worldcat.org/isbn/9781576878613> ;
    wdrs:describedby <http://www.worldcat.org/title/-/oclc/972243115> ;
    .


Related Entities

<http://experiment.worldcat.org/entity/work/data/4764498395#Person/haberberg_karen> # Karen Haberberg
    a schema:Person ;
    schema:familyName "Haberberg" ;
    schema:givenName "Karen" ;
    schema:name "Karen Haberberg" ;
    .

<http://experiment.worldcat.org/entity/work/data/4764498395#Topic/children_with_disabilities> # Children with disabilities
    a schema:Intangible ;
    schema:name "Children with disabilities"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/4764498395#Topic/genetic_disorders_in_children> # Genetic disorders in children
    a schema:Intangible ;
    schema:name "Genetic disorders in children"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/4764498395#Topic/genetic_disorders_in_children_patients> # Genetic disorders in children--Patients
    a schema:Intangible ;
    schema:name "Genetic disorders in children--Patients"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/4764498395#Topic/genetic_disorders_in_children_patients_family_relationships> # Genetic disorders in children--Patients--Family relationships
    a schema:Intangible ;
    schema:name "Genetic disorders in children--Patients--Family relationships"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/4764498395#Topic/parents_of_children_with_disabilities> # Parents of children with disabilities
    a schema:Intangible ;
    schema:name "Parents of children with disabilities"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/4764498395#Topic/photography_artistic> # Photography, Artistic
    a schema:Intangible ;
    schema:name "Photography, Artistic"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/4764498395#Topic/portrait_photography> # Portrait photography
    a schema:Intangible ;
    schema:name "Portrait photography"@en ;
    .

<http://worldcat.org/entity/work/id/4764498395> # Photographs.
    schema:name "Photographs." ;
    .

<http://worldcat.org/isbn/9781576878613>
    a schema:ProductModel ;
    schema:isbn "1576878619" ;
    schema:isbn "9781576878613" ;
    .


Content-negotiable representations

Close Window

Please sign in to WorldCat 

Don't have an account? You can easily create a free account.