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Populations and genetics : legal and socio-ethical perspectives

Author: Bartha Maria Knoppers
Publisher: Leiden ; Boston : Martinus Nijhoff, 2003.
Edition/Format:   Print book : Conference publication : EnglishView all editions and formats
Summary:

Contains papers that covers population research and banking as well as accompanying confidentiality, and governance concerns. This book concludes with a Statement of Principles on the Ethical Conduct  Read more...

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Genre/Form: Conference papers and proceedings
Congresses
Congrès
Material Type: Conference publication
Document Type: Book
All Authors / Contributors: Bartha Maria Knoppers
ISBN: 9004136789 9789004136786
OCLC Number: 55039993
Notes: Proceedings of the 3rd International DNA Sampling Conference held in Montreal, Québec, 2002.
Description: xix, 648 pages : illustrations ; 25 cm
Contents: In memoriam --
Prologue / Bartha Maria Knoppers --
Of Biobanks and Databases --
UK DNA Sample Collections for Research / Frances C. Rawle --
Estonian Genome Project--Large Scale Health Status Description and DNA Collection / Andres Rannamae --
Surveying the Population Biobankers / Genevieve Cardinal, Mylene Deschenes --
The Israeli DNA and Cell Line Collection: A Human Diversity Repository / David Gurwitz, Orit Kimchi, Batsheva Bonne-Tamir --
DNA Data Bank of Japan as an Indispensable Public Database / Satoru Miyazaki, Yoshio Tateno --
A Survey of the Variability of DNA Banks Worldwide / Nicole Palmour --
An Empirical Survey on Biobanking of Human Genetic Material and Data in Six EU Countries / Anne Cambon-Thomsen, I. Hirtzlin, N. Preaubert, C. Dubreuil, J. Duchier, B. Jansen, J. Simon, P. Lobato de Faria, A. Perez-lezaun, B. Visser, G. Williams, J.C. Galloux --
Mutation Databases and Ethical Considerations / Richard G.H. Cotton, Ourania Horaitis --
Of Populations and Communities --
Community Engagement in Genetic Research: The "Slow Code" of Research Ethics? / Eric T. Juengst --
Competing Perspectives on Reasons for Participation and Non-Participation in the North Cumbria Community Genetics Project / Erica Haimes, Michael Whong-barr --
The Engagement of Consumers in Genetics Education: Lessons Learned / Michele A. Lloyd-Puryear, Penny Kyler, Gloria Weissman --
Racial Profiling of DNA Samples: Will it Affect Scientific Knowledge About Human Genetic Variation? / Sandra Soo-Jin Lee, Barbara A. Koenig.
Responsibility: edited by Bartha Maria Knoppers.

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