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Principles and obstacles for sharing data from environmental health research : workshop summary

Author: Robert Pool; Erin Rusch; National Academies of Sciences, Engineering, and Medicine (U.S.). Roundtable on Environmental Health Sciences, Research, and Medicine,; National Academies of Sciences, Engineering, and Medicine (U.S.),
Publisher: Washington, DC : National Academies Press, [2016]
Edition/Format:   eBook : Document : Conference publication : EnglishView all editions and formats
Database:WorldCat
Summary:
On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects--making them both  Read more...
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Genre/Form: Congresses
Electronic books
Additional Physical Format: Print version:
Pool, Robert.
Principles and obstacles for sharing data from environmental health research
Washington, D.C. : National Academies Press, 2016
Material Type: Conference publication, Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Robert Pool; Erin Rusch; National Academies of Sciences, Engineering, and Medicine (U.S.). Roundtable on Environmental Health Sciences, Research, and Medicine,; National Academies of Sciences, Engineering, and Medicine (U.S.),
ISBN: 9780309370851 030937085X 9780309370868 0309370868
OCLC Number: 949278630
Description: 1 online resource (1 PDF file (xii, 101 pages)) : illustrations.
Contents: Introduction --
Current approaches and weaknesses of those approaches --
The benefits of data sharing --
Issues and challenges associated with data sharing --
Possible ways forward.
Responsibility: Robert Pool and Erin Rusch, rapporteurs ; Roundtable on Environmental Health Sciences, Research, and Medicine, Board on Population Health and Public Health Practice, Health and Medicine Division, National Academies of Sciences, Engineering, Medicine.
More information:

Abstract:

On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects--making them both transparent and accessible to others--raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.

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