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Protecting research confidentiality : what happens when law and ethics collide

Author: T S Palys; John Lowman
Publisher: Toronto : James Lorimer & Company Ltd., Publishers, [2014] ©2014
Series: Canadian Association of University Teachers series.
Edition/Format:   Print book : EnglishView all editions and formats
Summary:
"Many professionals (including journalists, lawyers, social workers, accountants, therapists, physicians, and police officers) depend on the expectation of confidentiality from people they deal with every day. This book provides the most comprehensive available discussion of confidentiality in research, a good understanding of what the law says today, and how it needs to be changed to ensure that the public interest  Read more...
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Additional Physical Format: Palys, T.S. (Theodore Stephen).
Protecting research confidentiality.
(CaOONL)20149043287
Document Type: Book
All Authors / Contributors: T S Palys; John Lowman
ISBN: 9781459407039 1459407032
OCLC Number: 884616422
Description: 430 pages ; 23 cm.
Contents: Foreword / James L. Turk --
Threats to research confidentiality --
Ogden's research on euthanasia and assisted suicide --
The coroner, the media, and SFU --
Defending research participants --
Protecting research participants, or protecting the University from research participants? --
Ogden v. SFU --
The federal government's research ethics agenda --
Justice for Ogden --
Challenging institutional conflict of interest --
Meeting with the ethics committee --
Caveat emptor ethics --
An unusual research opportunity --
SFU's administrative culture: "up on dat mountain, dey is stuck real good" --
SFU's "hollow and timid" defence of academic freedom --
Dialogue with the ethics committee continues --
What the Dickens? --
The TCPS is released --
The Russel Ogden decision review --
"Researchers should be aware of the relevant law" --
Implementing Wigmore Part I: prerequisites for consideration --
Implementing Wigmore Part II: when the rubber hits the road --
Kangaroo court --
Limited confidentiality 2.0: the SFU ethics committee's "duty to report" --
Making ethics more legal, or law more ethical? --
What if? --
The national scene --
Answer to a riddle --
University accountability on trial --
The "Jimmy" interview: the importance of "good facts" --
Going the distance.
Series Title: Canadian Association of University Teachers series.
Responsibility: Ted Palys and John Lowman.

Abstract:

"Many professionals (including journalists, lawyers, social workers, accountants, therapists, physicians, and police officers) depend on the expectation of confidentiality from people they deal with every day. This book provides the most comprehensive available discussion of confidentiality in research, a good understanding of what the law says today, and how it needs to be changed to ensure that the public interest is served"--Publisher.

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