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Relevance of health literacy to precision medicine : proceedings of a workshop

Author: Joe Alper; National Academies of Sciences, Engineering, and Medicine (U.S.). Roundtable on Health Literacy,
Publisher: Washington, DC : The National Academies Press, [2016]
Edition/Format:   eBook : Document : Conference publication : EnglishView all editions and formats
Summary:
On January 20, 2015, President Obama announced the Precision Medicine Initiative (PMI) in his State of the Union address. The PMI, by developing new approaches for detecting, measuring, and analyzing a wide range of biomedical information including molecular, genomic, cellular, clinical, behavioral, physiological, and environmental parameters, is intended to enable a new era of medicine in which researchers,  Read more...
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Genre/Form: Electronic books
Conference papers and proceedings
Congress
Congresses
Additional Physical Format: Print version:
Roundtable on Health Literacy Board on Population Health and Public Health Practice.
Relevance of health literacy to precision medicine : proceedings of a workshop.
Washington, District of Columbia : National Academies Press, ©2016
xix, 104 pages
Named Person: Precision Medicine Initiative.
Material Type: Conference publication, Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Joe Alper; National Academies of Sciences, Engineering, and Medicine (U.S.). Roundtable on Health Literacy,
ISBN: 9780309447324 0309447321 030944733X 9780309447331
OCLC Number: 962454795
Description: 1 online resource (1 PDF file (xix, 104 pages)) : illustrations.
Contents: Introduction --
Genetic literacy --
The intersection of health literacy and precision medicine --
Health liteacy in precision medicine research --
Communicating risk and uncertainty in the clinical setting --
Communicating with the public --
Reflections on the day --
References --
Appendix A: Workshop agenda --
Appendix B: Biographical sketches of workshop speakers, moderators, and reactors.
Responsibility: Joe Alper, rapporteur ; Roundtable on Health Literacy, Board on Population Health and Public Health Practice, Health and Medicine Division, the National Academies of Sciences, Engineering, Medicine.

Abstract:

On January 20, 2015, President Obama announced the Precision Medicine Initiative (PMI) in his State of the Union address. The PMI, by developing new approaches for detecting, measuring, and analyzing a wide range of biomedical information including molecular, genomic, cellular, clinical, behavioral, physiological, and environmental parameters, is intended to enable a new era of medicine in which researchers, providers, and patients work together to develop individualized care. Part of this effort included the creation of a national, large-scale research participant group, or cohort. The PMI Cohort Program is aimed at extending precision medicine to many diseases, including both rare and common diseases such as diabetes, heart disease, Alzheimer's disease, obesity, and mental illnesses such as depression, bipolar disorder, and schizophrenia, by building a national research cohort of 1 million or more U.S. participants. An important challenge to assembling the PMI Cohort will be to reach individuals who are socioeconomically disadvantaged. Individuals who are socioeconomically disadvantaged have lower health literacy; often belong to racial, ethnic, and minority communities; and are often less likely to participate in research studies and biorepositories. To explore possible strategies and messaging designs, the Roundtable on Health Literacy formed an ad hoc committee charged with planning and conducting a 1-day public workshop on the intersection of health literacy and precision medicine. The workshop participants discussed a variety of topics including an overview of precision medicine and its potential, the relevance of health literacy to the success of precision medicine efforts, and perspectives and understanding of different groups, such as health care providers, consumers, and insurers. This publication summarizes the presentations and discussions from the workshop.

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