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The right to try : how the federal government prevents Americans from getting the life-saving treatments they need

Author: Darcy Olsen
Publisher: New York, NY : Harper, an imprint of HarperCollins Publishers, [2015] ©2015
Edition/Format:   Print book : English : First editionView all editions and formats
Summary:
"The inspiring state-by-state campaign to allow sick Americans access to experimental treatments currently blocked by the government, chronicled by the woman leading the charge. Should you need the government's permission to try to save your own life? Today, the FDA regulates medications available to Americans. But it takes an average of ten years to bring a new drug to market. Every day thousands of Americans die  Read more...
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Document Type: Book
All Authors / Contributors: Darcy Olsen
ISBN: 9780062407528 006240752X 9780062407535 0062407538
OCLC Number: 922291406
Description: viii, 311 pages : illustrations ; 24 cm
Contents: Introduction: Meet Lazarus : the first man in medical history to survive Lou Gehrig's Disease --
Sophie's choice : how the FDA let a mother save one son ... and left her other son to die --
Five thousand miles for a cure : how one American family moved overseas to save their dying son --
What Steve Jobs saw : how the FDA stops American doctors from using a proven cancer treatment --
Making medical miracles : the cutting-edge cancer killers you can't get yet --
Inside man : how one biotech CEO came to champion Right to Try --
We are the 99 percent : how Right to Try has taken America by storm --
Compassionate use : the mythical unicorn --
Would you use a fifteen-year-old cell phone? : how to get American medicine back on top --
If you have the right to die, you should have the right to try --
Where do I start? : a step-by-step guide to seeking an investigational treatment --
Afterword : Everyone deserves the right to try : an update on Jean McNary, Ted Harada, and Diego Morris.
Responsibility: Darcy Olsen.

Abstract:

"The inspiring state-by-state campaign to allow sick Americans access to experimental treatments currently blocked by the government, chronicled by the woman leading the charge. Should you need the government's permission to try to save your own life? Today, the FDA regulates medications available to Americans. But it takes an average of ten years to bring a new drug to market. Every day thousands of Americans die unnecessarily from fatal diseases for which lifesaving treatments that now exist or are being developed are ruled too "dangerous" for commercial distribution. But how does that FDA standard apply to someone in the terminal stages of cancer or ALS? 'Right to Try' is filled with stories of heroism and heartbreak -- of courageous Americans who beat illnesses no one thought could be defeated; parents who won the fight to get their children access to cutting-edge cures; patients who were denied life-saving treatments by the government ostensibly for their own protection; and incredible doctors and researchers pioneering revolutionary cures. Drawing on her experience fighting for patients, Darcy Olsen goes inside the federal bureaucracy that is stopping millions from accessing these lifesaving treatments, lays out the case for expanding access to experimental medicines, and describes the ongoing national campaign to change these laws state-by-state. Cogent and persuasive, this powerful and informative book is clarion call for reform that definitively answers the question: When your mortality hangs in the balance, shouldn't you have the right to try to save your own life?"--

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Bureaucratic inefficiency and obduracy are always infuriating. When the Food and Drug Administration is involved, they can be lethal. Using true stories, some heroic and others heartbreaking, Darcy Read more...

 
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