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Rubber band girl : a mother's memoir

Author: Jennifer Nielson
Publisher: San Clemente, CA : Sourced Media Books, LLC, [2013]
Edition/Format:   eBook : Document : Biography : EnglishView all editions and formats
Summary:
Rubber Band Girl is a heartwarming story of a mother and daughter who never give up on life or on each other. Marfan Syndrome, or "Rubber Band Disease," as it is commonly called, has taken the lives of too many, too soon. A disease that attacks the ligaments of the body, it is associated with heart and vision problems, extreme flexibility of the joints, and, its most noticeable feature, excessive height. In this  Read more...
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Genre/Form: Electronic books
Biography
Additional Physical Format: Print version:
Nielson, Jennifer.
Rubber band girl.
San Clemente, CA : Sourced Media Books, LLC, ©2013
(OCoLC)847688848
Named Person: Hadley Nielson; Jennifer Nielson
Material Type: Biography, Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Jennifer Nielson
ISBN: 9781461934622 1461934621 9781937458614 193745861X
OCLC Number: 853569417
Description: 1 online resource (128 pages) : illustrations
Responsibility: Jennifer Nielson.
More information:

Abstract:

Rubber Band Girl is a heartwarming story of a mother and daughter who never give up on life or on each other. Marfan Syndrome, or "Rubber Band Disease," as it is commonly called, has taken the lives of too many, too soon. A disease that attacks the ligaments of the body, it is associated with heart and vision problems, extreme flexibility of the joints, and, its most noticeable feature, excessive height. In this inspiring memoir, Jennifer Nielson recounts her journey as the mother of Hadley, a beautiful young girl with Marfan Syndrome. Together, they climb the mountains of life-threatening health problems and endless doctor visits. Together, they travel through the deep valleys of sorrow and loss. Together, they successfully manage Marfan's-and forge an unbreakable bond in the process.

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