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When science offers salvation : patient advocacy and research ethics
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When science offers salvation : patient advocacy and research ethics

Auteur : Rebecca Dresser
Éditeur : Oxford ; New York : Oxford University Press, 2001.
Édition/format :   Livre : AnglaisVoir toutes les éditions et les formats
Résumé :
"Biomedical research today has a high public profile, largely because of patient advocacy.

Following in the footsteps of HIV/AIDS activists, advocates representing an array of patient groups are now vocal partners in the research enterprise. Advocates want research practices and policies to be more responsive to the people who must live.

This book shows how advocates have transformed health research, often - but

"Dresser is the first to examine patient advocacy through the lens of research ethics. She reveals the many ways in which a quest for cures and improved therapies shapes advocacy work.

She exposes the bright and dark sides of patients' expanded opportunities to enroll in clinical trials and join researchers in planning and evaluating studies. She considers the virtues and drawbacks of giving patients more influence over how the.

She argues that advocates should do more to promote ethical human studies and responsible media reporting about research."

"Patient advocates can help make research more ethical, but advocacy raises ethical issues of its own.

This book clearly and vividly recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates."--BOOK JACKET.  Lire la suite...

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Détails

Format physique additionnel : Online version:
Dresser, Rebecca.
When science offers salvation.
Oxford ; New York : Oxford University Press, 2001
(OCoLC)606560092
Online version:
Dresser, Rebecca.
When science offers salvation.
Oxford ; New York : Oxford University Press, 2001
(OCoLC)608026185
Type d’ouvrage : Ressource Internet
Format : Livre, Ressource Internet
Tous les auteurs / collaborateurs : Rebecca Dresser
ISBN : 0195143132 9780195143133
Numéro OCLC : 44750820
Description : xii, 215 p. ; 24 cm.
Responsabilité : Rebecca Dresser.
Plus d’informations :

Résumé :

"Biomedical research today has a high public profile, largely because of patient advocacy.

Following in the footsteps of HIV/AIDS activists, advocates representing an array of patient groups are now vocal partners in the research enterprise. Advocates want research practices and policies to be more responsive to the people who must live.

This book shows how advocates have transformed health research, often - but not always - for the better."

"Dresser is the first to examine patient advocacy through the lens of research ethics. She reveals the many ways in which a quest for cures and improved therapies shapes advocacy work.

She exposes the bright and dark sides of patients' expanded opportunities to enroll in clinical trials and join researchers in planning and evaluating studies. She considers the virtues and drawbacks of giving patients more influence over how the.

She argues that advocates should do more to promote ethical human studies and responsible media reporting about research."

"Patient advocates can help make research more ethical, but advocacy raises ethical issues of its own.

This book clearly and vividly recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates."--BOOK JACKET.

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