Plain talk about the human genome project : a Tuskegee University Conference on its promise and perils ... and matters of race
Congress
xviii, 292 pages : illustrations, maps ; 23 cm
9781891196010, 1891196014
38042860
Foreword / Benjamin F. Payton
Preface / Edward Smith and Walter Sapp
The human genome project; what is it? / Ari Patrinos
The promise of the human genome project; an introduction / Richard Myers
Genome centers; what is their role? / Maynard V. Olson
After the end of the beginning; the story of the breast cancer gene / Marilyn E. Thompson
Hypertension in the African diaspora; genes and the environment / Richard Cooper, M.D
Technology transfer / Ronald King. Race differences; genetic evidence / Luigi Luca Cavalli-Sforza
Global perspectives on the human genome project / Raymond A. Zilinskas
The dilemma of difference / Patricia King
The responsibilities of scientists in the genetics and race controversies / Jon Beckwith
Assessing the human genome project; an African American and bioanthropological critique / Fatimah Jackson
G-RAP; a model HBCU genomic research and training program / Georgia M. Dunston
Ethical, legal and social concerns about the HGP and genome data use / Hans Goerl
Can what you don't know hurt you? The case of genetic screening for breast cancer / Courtney S. Campbell
The ethical, legal, and social implications program at NHGRI, NIH / Elizabeth Thomson. Technocracy and democracy / Philip Bereano
The ethics of predictive genetic screening; are the benefits worth the risks? / Robert Murray, Jr
Ethics and the future of genetic testing? / Glenn McGee
Genetic discrimination in health insurance and why it is wrong / Thomas Murray
Insurance concerns; are the fears exaggerated? / David J. Christianson
Genetic testing and insurance; a question of balance / Joan Herman
The genetic privacy act; a proposal for national legislation / Patricia Roche, Leonard H. Glantz, George J. Annas
The brave new world of DNA; transcendence or transgression / Vijaya L. Melnick
Who's that fish on my line? The dangers of electronic distribution of genetic information / Hans S. Goerl. Of genes and genomes / David Botstein
Molecular halos and behavioral glows / Troy Duster
The virtual workplace; a model biotechnology classroom program / Robert Yuan
Educational programs on the HGP sponsored by the NHGRI / Paula Gregory
The HuGEM project; education consumers and health professionals / Virginia Lapham
Classroom debates; facilitating student awareness of human genetics / Aleta Sullivan
Students; how we can help / Carlton P. Jones
Role of the church in increasing community awareness of the HGP / Edward L. Wheeler
The conference was held September 26-28, 1996 at Tuskegee University