Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit. (eBook, 2014) [WorldCat.org]
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Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit.

Publisher: Cary : Oxford University Press, 2014. ©2011
Edition/Format:   eBook : Document : EnglishView all editions and formats
Summary:

This book examines the ethical and social issues that arise in the conduct of genetic research, from the discovery phase, through development and delivery research, to health outcomes.

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Details

Genre/Form: Electronic books
Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
ISBN: 9780199909742 0199909741
OCLC Number: 1097149461
Description: 1 online resource
Contents: 1. Making Good on the Promise of Genetics: Justice in Translational Science ; Sara Goering, Suzanne Holland, and Kelly A. Edwards ; 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo ; Patricia Kuszler ; 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter? ; Stephanie Malia Fullerton ; 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science ; Holly K. Tabor and Martine Lappe ; Commentary on the Discovery Phase of Research ; Sara Goering, Suzanne Holland, and Kelly A. Edwards ; 5. Early Assessment of Translational Opportunities ; Patricia Deverka and David L. Veenstra ; 6. The power of knowledge: How carrier and prenatal screening altered the clinical goals of genetic testing ; Commentary on the Development Phase of the Translational Cycle ; 7. Integrating genetic tests into clinical practice: The role of guidelines ; Anne-Marie Laberge and Wylie Burke ; 8. Genomics and the Health Commons ; Nora Henrikson and Wylie Burke ; Commentary on the Delivery Phase of the Translational Cycle ; Sara Goering, Suzanne Holland, and Kelly A. Edwards ; 9. The Role of Advocacy in Newborn Screening ; Catharine Riley and Carolyn Watts ; 10. What Outcomes? Whose Benefits? ; Wylie Burke and Nancy Press ; Commentary on the Outcomes Phase of the Translational Cycle ; Sara Goering, Suzanne Holland, and Kelly A. Edwards ; 11. Bringing the "Best Science" to Bear on Youth Suicide: Why Community Perspectives Matter ; Rosalina James and Helene Starks ; 12. Conclusion ; Kelly A. Edwards, Sara Goering, Suzanne Holland and Maureen Kelley

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The topics the book covers represent a pantheon of issues relating to genetic translation, from the political underpinnings to the historic uses of newborn screenings. The chapters covering prenatal Read more...

 
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