skip to content
Anonymity in participatory research : is it attainable? is it desirable? Preview this item
ClosePreview this item
Checking...

Anonymity in participatory research : is it attainable? is it desirable?

Author: Kristin Liabo; Helen Roberts; Nathan Emmerich
Publisher: London : SAGE Publications Ltd., 2018.
Series: SAGE Research Methods., Cases.
Edition/Format:   eBook : Document : EnglishView all editions and formats
Summary:
Patient perspectives in multi-disciplinary study teams can add to the relevance, quality, and application of research. In the United Kingdom, ethics committees tend to distinguish patient and citizen involvement from research participation. This means that when researchers ask patients or citizens for advice on a study, or invite them to collaborate with the study team, they do not need ethical approval. This puts  Read more...
Rating:

(not yet rated) 0 with reviews - Be the first.

Subjects
More like this

Find a copy online

Links to this item

Find a copy in the library

&AllPage.SpinnerRetrieving; Finding libraries that hold this item...

Details

Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Kristin Liabo; Helen Roberts; Nathan Emmerich
ISBN: 9781526437013 1526437015
OCLC Number: 1020262842
Description: 1 online resource.
Series Title: SAGE Research Methods., Cases.
Responsibility: Kristin Liabo & Helen Roberts ; edited by Nathan Emmerich.

Abstract:

Patient perspectives in multi-disciplinary study teams can add to the relevance, quality, and application of research. In the United Kingdom, ethics committees tend to distinguish patient and citizen involvement from research participation. This means that when researchers ask patients or citizens for advice on a study, or invite them to collaborate with the study team, they do not need ethical approval. This puts their input on a similar footing to clinicians, other practitioners, academics, and policy makers. But there are times when people's input into study design and implementation derives from their participation as research subjects. This is more likely to be common in qualitative research, where a researcher's interaction with participants may result in collaboration on data collection and analysis. Drawing on a study with young people leaving foster and residential care, this case study describes what we did when a research participant wanted to be acknowledged by name. This request challenged the principle of anonymity which ethics committees and researchers commonly expect to be afforded to, and welcomed by, participants. We declined the request on two grounds. First, the commitments we had made in our application for ethics approval and second, our concern that naming one participant might breach the confidentiality of those who preferred to remain anonymous. Here, we ask whether it is possible to conduct fully anonymised participatory research and suggest that involvement of patients and citizens as research advisors carries challenges to established conventions.

Reviews

User-contributed reviews
Retrieving GoodReads reviews...
Retrieving DOGObooks reviews...

Tags

Be the first.

Similar Items

Confirm this request

You may have already requested this item. Please select Ok if you would like to proceed with this request anyway.

Linked Data


Primary Entity

<http://www.worldcat.org/oclc/1020262842> # Anonymity in participatory research : is it attainable? is it desirable?
    a schema:CreativeWork, schema:MediaObject, schema:Book ;
    library:oclcnum "1020262842" ;
    library:placeOfPublication <http://id.loc.gov/vocabulary/countries/enk> ;
    schema:about <http://dewey.info/class/300.72/> ;
    schema:about <http://experiment.worldcat.org/entity/work/data/4732703914#Topic/participant_observation> ; # Participant observation
    schema:about <http://experiment.worldcat.org/entity/work/data/4732703914#Topic/anonymous_persons> ; # Anonymous persons
    schema:author <http://experiment.worldcat.org/entity/work/data/4732703914#Person/liabo_kristin> ; # Kristin Liabo
    schema:author <http://experiment.worldcat.org/entity/work/data/4732703914#Person/roberts_helen> ; # Helen Roberts
    schema:bookFormat schema:EBook ;
    schema:datePublished "2018" ;
    schema:description "Patient perspectives in multi-disciplinary study teams can add to the relevance, quality, and application of research. In the United Kingdom, ethics committees tend to distinguish patient and citizen involvement from research participation. This means that when researchers ask patients or citizens for advice on a study, or invite them to collaborate with the study team, they do not need ethical approval. This puts their input on a similar footing to clinicians, other practitioners, academics, and policy makers. But there are times when people's input into study design and implementation derives from their participation as research subjects. This is more likely to be common in qualitative research, where a researcher's interaction with participants may result in collaboration on data collection and analysis. Drawing on a study with young people leaving foster and residential care, this case study describes what we did when a research participant wanted to be acknowledged by name. This request challenged the principle of anonymity which ethics committees and researchers commonly expect to be afforded to, and welcomed by, participants. We declined the request on two grounds. First, the commitments we had made in our application for ethics approval and second, our concern that naming one participant might breach the confidentiality of those who preferred to remain anonymous. Here, we ask whether it is possible to conduct fully anonymised participatory research and suggest that involvement of patients and citizens as research advisors carries challenges to established conventions."@en ;
    schema:editor <http://experiment.worldcat.org/entity/work/data/4732703914#Person/emmerich_nathan> ; # Nathan Emmerich
    schema:exampleOfWork <http://worldcat.org/entity/work/id/4732703914> ;
    schema:inLanguage "en" ;
    schema:isPartOf <http://experiment.worldcat.org/entity/work/data/4732703914#Series/sage_research_methods> ; # SAGE Research Methods.
    schema:isPartOf <http://experiment.worldcat.org/entity/work/data/4732703914#Series/sage_research_methods_cases> ; # SAGE Research Methods. Cases
    schema:name "Anonymity in participatory research : is it attainable? is it desirable?"@en ;
    schema:productID "1020262842" ;
    schema:url <http://methods.sagepub.com/case/anonymity-in-participatory-research-is-it-attainable-desirable> ;
    schema:workExample <http://worldcat.org/isbn/9781526437013> ;
    wdrs:describedby <http://www.worldcat.org/title/-/oclc/1020262842> ;
    .


Related Entities

<http://experiment.worldcat.org/entity/work/data/4732703914#Person/emmerich_nathan> # Nathan Emmerich
    a schema:Person ;
    schema:familyName "Emmerich" ;
    schema:givenName "Nathan" ;
    schema:name "Nathan Emmerich" ;
    .

<http://experiment.worldcat.org/entity/work/data/4732703914#Person/liabo_kristin> # Kristin Liabo
    a schema:Person ;
    schema:familyName "Liabo" ;
    schema:givenName "Kristin" ;
    schema:name "Kristin Liabo" ;
    .

<http://experiment.worldcat.org/entity/work/data/4732703914#Person/roberts_helen> # Helen Roberts
    a schema:Person ;
    schema:familyName "Roberts" ;
    schema:givenName "Helen" ;
    schema:name "Helen Roberts" ;
    .

<http://experiment.worldcat.org/entity/work/data/4732703914#Series/sage_research_methods> # SAGE Research Methods.
    a bgn:PublicationSeries ;
    schema:hasPart <http://www.worldcat.org/oclc/1020262842> ; # Anonymity in participatory research : is it attainable? is it desirable?
    schema:name "SAGE Research Methods." ;
    .

<http://experiment.worldcat.org/entity/work/data/4732703914#Series/sage_research_methods_cases> # SAGE Research Methods. Cases
    a bgn:PublicationSeries ;
    schema:hasPart <http://www.worldcat.org/oclc/1020262842> ; # Anonymity in participatory research : is it attainable? is it desirable?
    schema:name "SAGE Research Methods. Cases" ;
    .

<http://experiment.worldcat.org/entity/work/data/4732703914#Topic/anonymous_persons> # Anonymous persons
    a schema:Intangible ;
    schema:name "Anonymous persons"@en ;
    .

<http://experiment.worldcat.org/entity/work/data/4732703914#Topic/participant_observation> # Participant observation
    a schema:Intangible ;
    schema:name "Participant observation"@en ;
    .

<http://worldcat.org/isbn/9781526437013>
    a schema:ProductModel ;
    schema:isbn "1526437015" ;
    schema:isbn "9781526437013" ;
    .


Content-negotiable representations

Close Window

Please sign in to WorldCat 

Don't have an account? You can easily create a free account.