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Big data, health law, and bioethics

Author: I Glenn Cohen; Holly Fernandez Lynch; Effy Vayena; Urs Gasser
Publisher: Cambridge, United Kingdom ; New York, NY : Cambridge University Press, 2018.
Edition/Format:   eBook : Document : EnglishView all editions and formats
Summary:
When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improve drug safety, or ill, as in insurance discrimination? Will it disrupt health care (and the health care system) as we  Read more...
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Genre/Form: Methods (Music)
Additional Physical Format: Electronic reproduction of (manifestation):
Big data, health law, and bioethics.
Cambridge, United Kingdom ; New York, NY : Cambridge University Press, 2018
(DLC) 2017041362
(OCoLC)1002290923
Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: I Glenn Cohen; Holly Fernandez Lynch; Effy Vayena; Urs Gasser
ISBN: 9781108147972 1108147976
OCLC Number: 1029059218
Description: 1 online resource (xvii, 354 pages)
Contents: Big data and individual autonomy in a crowd / Barbara J. Evans --
Big data's epistemology and its implications for precision medicine and privacy / Jeffrey M. Skopek --
Big data's epistemology and its implications for precision medicine and privacy / Tal Z. Zarsky --
Correlation vs. causation in health-related big data analysis : the role of reason and regulation / Tal Z. Zarsky --
Big data and regulatory arbitrage in healthcare / Nicolas P. Terry --
The future of pharmacovigilance : big data and the False Claims Act / Efthimios Parasidis --
Big data's new discrimination threats : amending the Americans with Disabilities Act to cover discrimination based on data-driven predictions of future disease / Sharona Hoffman --
Who's left out of big data? How big data collection, analysis, and use neglects populations most in need of medical and public health research and interventions / Sarah E. Malanga, Jonathan D. Loe, Christopher T. Robertson, Kenneth S. Ramos --
Potential roadblocks in health care big data collection : Gobeille v. Liberty Mutual, ERISA, and all-payer claims databases / Carmel Shachar, Aaron S. Kesselheim, Gregory Curfman, Ameet Sarpatwari --
Avoiding over-regulation in the medical Internet of things / Dov Greenbaum --
Data policy for Internet of things health care devices : aligning patient, industry, and privacy goals in the age of big data / Marcus Comiter --
Thought leader perspectives on risks in precision medicine research / Laura M. Beskow, Catherine M. Hammack, Kathleen M. Brelsford, Kevin C. McKenna --
From individual to group privacy in biomedical big data / Brent Mittelstadt --
Big data and informed consent : the case of estimated data / Donna M. Gitter --
Is there a duty to share health care data? / I. Glenn Cohen --
Societal lapses in protecting individual privacy, the common rule, and big data health research / Laura Odwazny --
Common rule and research with data, big and small / Liza Dawson --
Big data, HIPAA and the common rule : time for big change? / Margaret Foster Riley --
Data sharing that enables post-approval drug and device research and protects patient privacy : best practice recommendations / Ameet Sarpatwari, Bradley A. Malin, Aaron S. Kesselheim, Joshua J. Gagne, Sebastian Schneeweiss --
Big data and human medical judgment : regulating next generation clinical decision support / Jeffrey M. Senger, Patrick O'Leary --
Medical malpractice and black-box medicine / W. Nicholson Price II --
Big data & intellectual property rights in the health and life sciences / Timo Minssen, Justin Pierce --
The pathologies of data-generating patents / Ted Sichelman, Brenda M. Simon. Avoiding over-regulation in the medical Internet of things / Dov Greenbaum --
Data policy for Internet of things health care devices : aligning patient, industry, and privacy goals in the age of big data / Marcus Comiter --
Thought leader perspectives on risks in precision medicine research / Laura M. Beskow, Catherine M. Hammack, Kathleen M. Brelsford, Kevin C. McKenna --
From individual to group privacy in biomedical big data / Brent Mittelstadt --
Big data and informed consent : the case of estimated data / Donna M. Gitter --
Is there a duty to share health care data? / I. Glenn Cohen --
Societal lapses in protecting individual privacy, the common rule, and big data health research / Laura Odwazny --
The common rule and research with data, big and small / Liza Dawson --
Big data, HIPAA and the common rule : time for big change? / Margaret Foster Riley --
Data sharing that enables post-approval drug and device research and protects patient privacy : best practice recommendations / Ameet Sarpatwari, Bradley A. Malin, Aaron S. Kesselheim, Joshua J. Gagne, Sebastian Schneeweiss --
Big data and human medical judgment : regulating next generation clinical decision support / Jeffrey M. Senger, Patrick O'Leary --
Medical malpractice and black-box medicine / W. Nicholson Price II --
Big data & intellectual property rights in the health and life sciences / Timo Minssen, Justin Pierce --
The pathologies of data-generating patents / Ted Sichelman, Brenda M. Simon.
Responsibility: edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser.

Abstract:

This book explores the legal and ethical implications - both challenges and opportunities - of using big data in health care and research.  Read more...

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