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The censor's hand : the misregulation of human-subject research

Author: Carl Schneider
Publisher: Cambridge, Massachusetts ; London, England : The MIT Press, [2015] ©2015
Series: Basic bioethics.
Edition/Format:   eBook : Document : EnglishView all editions and formats
Summary:
Medical and social progress depend on research with human subjects. When that research is done in institutions getting federal money, it is regulated by federally required and supervised bureaucracies called 'institutional review boards' expected to apply bioethical principles in making decisions. Do - can - these administrative agencies do more harm than good? This book answers this fundamental but long-unasked  Read more...
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Details

Genre/Form: Ressources Internet
Additional Physical Format: Version imprimée :
Schneider, Carl, 1948-
Censor's hand
(DLC) 2014034246
(OCoLC)890310351
Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Carl Schneider
ISBN: 9780262328784 026232878X
OCLC Number: 1004062358
Description: 1 ressource en ligne (xxx, 257 pages).
Contents: Research risk and regulationist stereotypes --
Cost is no object --
Arbitrary and capricious decisions --
The misshapen ideology of the IRB system --
The rule of law --
Censorship in a system of free expression.
Series Title: Basic bioethics.
Responsibility: Carl E. Schneider.

Abstract:

Medical and social progress depend on research with human subjects. When that research is done in institutions getting federal money, it is regulated by federally required and supervised bureaucracies called 'institutional review boards' expected to apply bioethical principles in making decisions. Do - can - these administrative agencies do more harm than good? This book answers this fundamental but long-unasked question by consulting a critical experience - the law's learning about regulation - and by amassing the empirical evidence scattered around many literatures.

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