Considerations for funding drugs for rare diseases : a report of the Ontario Citizens' Council (eBook, 2012) [WorldCat.org]
skip to content
Considerations for funding drugs for rare diseases : a report of the Ontario Citizens' Council Preview this item
ClosePreview this item
Checking...

Considerations for funding drugs for rare diseases : a report of the Ontario Citizens' Council

Author: Gerri Gershon; Ontario Citizens' Council.; Ontario. Ministry of Health and Long-Term Care.
Publisher: [Toronto, Ont.] : Ontario Citizens' Council, 2010
Edition/Format:   eBook : Document : EnglishView all editions and formats
Rating:

(not yet rated) 0 with reviews - Be the first.

Subjects
More like this

Find a copy online

Links to this item

Find a copy in the library

&AllPage.SpinnerRetrieving; Finding libraries that hold this item...

Details

Genre/Form: Electronic books
Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Gerri Gershon; Ontario Citizens' Council.; Ontario. Ministry of Health and Long-Term Care.
OCLC Number: 785802689
Notes: "March 31, 2010."
"Submitted to Helen Stevenson, Assistant Deputy Minister and Executive Officer, Ontario Public Drug Programs, Ontario Ministry of Health and Long-Term Care."
Description: 1 online resource (27 pages)
Contents: Executive summary --
1.0 The question --
2.0 Preparing for deliberations --
3.0 Consideration of drugs for rare diseases: 3.1 What is a Rare Disease? 3.2 How are Rare Diseases Treated? 3.3 Living with a Rare Disease; 3.4 Funding Drugs for Rare Diseases --
4.0 How the council did its work: 4.1 Four Ways to Think About Drugs for Rare Diseases; 4.2 Highlights from each Approach --
5.0 Council views on relevant societal values and related recommendations: 5.1 Compassion; 5.2 Equity and Fairness; 5.3 Balance the Common Good with the Needs of Particular Individuals; 5.4 Fiscal Responsibility; 5.5 Accountability to Taxpayers; 5.6 Advance Medical Knowledge; 5.7 Evidence Based Decisions; 5.8 Shared Responsibility; 5.9 Importance of Quality of Life and Longevity; 5.10 Other Areas of Concern --
6.0 Proposed model for funding drugs for rare diseases --
7.0 Council responses to the model and executive officer's questions: 7.1 Conditions Under Which Funding Should Take Place; 7.2 Mandatory Data Collection and Monitoring; 7.3 Criteria for Starting to Fund the Drug for a Patient; 7.4 Criteria for Stopping the Funding for a Patient --
8.0 Conclusion --
Appendices: 1: Ontario Citizens' Council; 2: Session Agenda; 3: Living with a Rare Disease: Names of Presenters; 4: Dialogue Guidelines.
Other Titles: Points à examiner concernant le financement des médicaments servant à traiter les maladies rares :
Responsibility: submitted by Gerri Gershon, Chair.
More information:

Reviews

User-contributed reviews
Retrieving GoodReads reviews...
Retrieving DOGObooks reviews...

Tags

Be the first.
Confirm this request

You may have already requested this item. Please select Ok if you would like to proceed with this request anyway.

Close Window

Please sign in to WorldCat 

Don't have an account? You can easily create a free account.