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The ethics of medical data donation

Author: Jenny Krutzinna; Luciano Floridi
Publisher: Cham, Switzerland : Springer Open, [2019]
Series: Philosophical studies series, v. 137.
Edition/Format:   Print book : EnglishView all editions and formats
Summary:

This open access book presents an ethical approach to utilizing personal medical data.

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Material Type: Internet resource
Document Type: Book, Internet Resource
All Authors / Contributors: Jenny Krutzinna; Luciano Floridi
ISBN: 3030043622 9783030043629
OCLC Number: 1057654357
Description: x, 198 pages ; 24 cm.
Contents: Ethical medical data donation : a pressing issue / Jenny Krutzinna and Luciano Floridi --
Data donation : how to resist the iLeviathan / Barbara Prainsack --
Data donations as exercises of sovereignty / Patrik Hummel, Matthias Braun, and Peter Dabrock --
The ethics of uncertainty for data subjects / Philip J. Nickel --
Incongruities and dilemmas in data donation : juggling our 1s and 0s / Kerina H. Jones --
Posthumous medical data donation : the case for a legal framework / Edina Harbinja --
Medical data donation, consent and the public interest after death : a gateway to posthumous data use / Annie Sorbie --
The personal data is political / Bastian Greshake Tzovaras and Athina Tzovara --
Personal data cooperatives : a new data governance framework for data donations and precision health / Ernst Hafen --
Defining data donation after death : metadata, families, directives, guardians and the route to big consent / David M. Shaw --
Enabling posthumous medical data donation : a plea for the ethical utilisation of personal health data / Jenny Krutzinna, Mariarosaria Taddeo, and Luciano Floridi --
An ethical code for posthumous medical data donation / Jenny Krutzinna, Mariarosaria Taddeo, and Luciano Floridi.
Series Title: Philosophical studies series, v. 137.
Responsibility: Jenny Krutzinna, Luciano Floridi, editors.

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"This book will be appreciated by interdisciplinary scholars and graduate students actively working to concretize the future of policy and ethics regarding data sharing in a globalized, Read more...

 
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