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Global genes, local concerns : legal, ethical, and scientific challenges in international biobanking

Author: Timo Minssen; Janne Rothmar Herrmann; Jens Schovsbo
Publisher: Cheltenham, UK ; Northampton, MA : Edward Elgar Publishing, [2019] ©2019
Edition/Format:   Print book : EnglishView all editions and formats
Summary:
"Biobanks hold a great potential for research into a large number of health issues and developments - a potential that is magnified even more when biobanks collaborate internationally. To facilitate international collaboration and overcome issues of the often very different legal and regulative landscapes between countries, many efforts of harmonization of biobank guidelines - particularly with respect to the issue  Read more...
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Additional Physical Format: Online version:
Global genes, local concerns.
Cheltenham, UK : Edward Elgar Publishing Limited, 2019
(OCoLC)1089575943
Document Type: Book
All Authors / Contributors: Timo Minssen; Janne Rothmar Herrmann; Jens Schovsbo
ISBN: 9781788116183 1788116186
OCLC Number: 1064759998
Description: xv, 282 pages : illustrations ; 24 cm
Contents: Part I. Biobanks, big data, and modes of collaboration --
1. Big data and the ethics of detail : the role of ethics work in the making of a cross-national research infrastructure for genetic research / Klaus Hoeyer, Aaro Tupasela, and Malene Bogehus Rasmussen --
2. Biobanks as knowledge institutions / Michael J. Madison --
Part II. Biobanks, translational medicine, and tech transfer --
3. Biobanks as innovation infrastructure for translational medicine / W. Nicholson Price II --
4. Responsible use of human biosamples in the bioscience industries / Brian J. Clark and Tine Bossow --
Part III. The interface of biobanks, human rights, and patient involvement --
5. Biobanking, scientific productions and human rights / Peter K. Yu --
6. You told me, right? Free and informed consent in European patent law / Åsa Hellstadius and Jens Schovsbo --
7. Dynamic consent and biobanking : a means of fostering sustainability? / Jane Kaye and Megan Prictor --
8. Generating trust in biobanks within the context of commercialization : can dynamic consent overcome trust challenges? / Esther van Zimmeren --
9. Exploitation and vulnerabilites in consent to biobank research in developing countries / Nana Cecilie Halmsted Kongsholm --
10. Biobanking and the consent problem / Timothy Caulfield and Blake Murdoch --
Part IV. Biobanks, guidelines, and good governance --
11. Responsible research and innovation and the advancement of biobanking and biomedical research / Helen Yu --
12. Do we need an expiration date for biobanks? / Franziska Vogl and Karine Sargsyan --
13. Biobanks and biobank networks / Eva Ortega-Paino and Aaro Tupasela --
14. IP policies for large bioresources : the fiction, fantasy and future of openness / Kathleen Liddell, Johnathon Liddicoat, and Matthew Jordan.
Responsibility: edited by Timo Minssen, Janne Rothmar Herrman, Jens Schovsbo.

Abstract:

Large-scale, interoperable biobanks are an increasingly important asset in today's life science research and, as a result, multiple types of biobanks are being established around the globe with very  Read more...

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