Healthcare and big data : digital specters and phantom objects (eBook, 2016) [WorldCat.org]
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Healthcare and big data : digital specters and phantom objects
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Healthcare and big data : digital specters and phantom objects

Author: Mary F E Ebeling
Publisher: New York : Palgrave Macmillan, 2016.
Edition/Format:   eBook : Document : EnglishView all editions and formats
Summary:
This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold to marketers. Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private  Read more...
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Details

Genre/Form: Electronic books
Additional Physical Format: Printed edition:
Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Mary F E Ebeling
ISBN: 9781137502216 1137502215
OCLC Number: 959617722
Description: 1 online resource
Contents: Dedication --
Acknowledgments --
Contents --
List of figures --
Chapter 1: Out of death, a birth. Phantom data --
A curious thing comes a-knockin' --
My marketing baby, born of big data --
The auto-ethnographic noir --
Chapter descriptions --
Notes --
References --
Chapter 2: The rise of the databased society. An industry you've never heard of --
Where do the data come from? --
Who has power over our data? Data brokers are worse than the NSA --
The databased society --
Notes --
References --
Chapter 3: Privacy and data phantoms. The biopolitics of phantom data --
Lively data and vaporized privacy rights --
Notes --
References. Chapter 4: Coercive consent and digital health information. Patient privacy and the elimination of informational consent --
Networks of disclosure under the three rules --
Privacy and consent from below --
Coercive consent in capitalist healthcare --
Notes --
References --
Chapter 5: The biopolitics of lively data. The privacy promises and market values of anonymization --
On the Internet, everybody knows you're a patient --
Ownership defines us: the "value-add" of anonymization and how data ownership is claimed --
Possession plus innovation equals ownership --
Notes --
References. Chapter 6: The uncanny lives of data commodities. Comrades --
My body as data subject-object of biocapital --
The data commodity comes to haunt me --
I am not a baby --
The immaterial gets "real" --
Notes --
References --
Chapter 7: The body of evidence. Data paranoia --
Experian owns us --
Empathy and the violence of "dumb" data --
Notes --
References --
Chapter 8: Life after death. The uncanny life of data --
From the black box to the databased society --
The noir ending --
References --
Index.
Responsibility: Mary F.E. Ebeling.

Abstract:

This highly original book is an ethnographic noir of how Big Data profits from patient private health information. Primarily told through a first-person noir narrative, Ebeling as a  Read more...

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