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Human tissue research : a European perspective on the ethical and legal challenges

Author: Christian Lenk
Publisher: Oxford : Oxford University Press, 2011.
Edition/Format:   Print book : English : 1st edView all editions and formats
Summary:
The use of human tissue for medical research and scientific progress raises many ethical and legal challenges. The procurement, storage and transfer of human tissue for research purposes have posed significant questions over recent years, and a number of high profile scandals in the UK prompted the publication of the Madden Report on Post Mortem Practice and Procedures in Irish hospitals in 2006. Additionally,  Read more...
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Material Type: Internet resource
Document Type: Book, Internet Resource
All Authors / Contributors: Christian Lenk
ISBN: 9780199587551 0199587558
OCLC Number: 687700458
Description: [xxv], 189 pages
Contents: Part 1: Key concepts of the ethical debate --
The biomedical uses of the body: lessons from the history of human rights and dignity / Y. Micheal Barilan --
Exploring alternative to informed consent in biobank research / Rieke van der Graaf, Johannes J.M. van Delden --
Respect as a precondition for use of human tissue for research pruposes / Austen Garwood-Gowers --
Risky business: re-evaluating participant risk in biobanking / Nils Hoppe --
Reciprocity, trust, and public interest in research biobanking: in search of a balance / Nadja K. Kanellopoulou --
Taking solidarity seriously: do biobank institutions have a moral obligation to inform their patients about incidental health findings? / Christian Lenk --
Beyond the dichotomy of individualism and solidarity: participation in biobank research in Sweden and Norway / Katharina Beier --
Part 2: The legal regulation of human tissue research --
Law, ethics, and human tissue research : integration or competition? / José Miola --
Legal paradigms of human tissue / Remigius N. Nwabueze --
Research with human biological material and personal data in biobanks: legal and regulatory framework in Switzerland / Bianka S. Dorr --
Legal issues surrounding French research-focused biobanks / Virginie Commin --
Biobanks: ethical and legal aspects of the collection and storage of human biological material in Italy / Antonio G. Spagnolo, Viviana Daloiso, Paola Parente --
How to achieve 'free movement of tissue' in the EU research area / Jasper Bovenberg --
Part 3: Practices --
disciplinary perspectives --
Ethical recommendations for the use of human biological material stored in pathology archives for research purposes / Christoph Brochhausen [and others] --
Informed consent when donating cells for the production of human tissue engineered products / Leen Trommelmans, Joseph Selling, Kris Dierickx --
The regulation of autologous stem cells in heart repair: comparing the UK and Germany / Susanne Weber, Dana Wilson-Kovacs, Christine Hauskeller --
Discovering informed consent: a case study on the practices of informed consent to tissue donation in Austria / Milena D. Bister.
Responsibility: edited by Christian Lenk [and others].
More information:

Abstract:

The use of human tissue for medical research and scientific progress raises many ethical and legal challenges. This multi-authored interdisciplinary text provides a fascinating insight into  Read more...

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The procurement, storage and transfer of human tissue for research purposes have posed significant questions over recent years, and a number of high profile scandals in the UK prompted the publication of the Madden Report on Post Mortem Practice and Procedures in Irish hospitals in 2006. Additionally, tissue-related research tends to be most promising if samples and information are shared across national borders, but the heterogeneity of current rules and guidelines within the member states of the European Union calls all the more for clarification. This multi-authored interdisciplinary text, edited by four experienced researchers, explores many of the issues concerning biobank-related research and aims to provide answers to the most urgent questions by means of ethical, philosophical, and legal investigation. It provides a fascinating insight into a wide range of interlinking research perspectives and serves as a comprehensive reference to the state of play ethically and legally in Europe. It will be of value to medics and social scientists, human tissue researchers, and policy makers who have an interest in ethical and legal issues of human tissue research.<\/span>\"@en<\/a> ;\u00A0\u00A0\u00A0\nschema:description<\/a> \"Part 1: Key concepts of the ethical debate -- The biomedical uses of the body: lessons from the history of human rights and dignity \/ Y. Micheal Barilan -- Exploring alternative to informed consent in biobank research \/ Rieke van der Graaf, Johannes J.M. van Delden -- Respect as a precondition for use of human tissue for research pruposes \/ Austen Garwood-Gowers -- Risky business: re-evaluating participant risk in biobanking \/ Nils Hoppe -- Reciprocity, trust, and public interest in research biobanking: in search of a balance \/ Nadja K. Kanellopoulou -- Taking solidarity seriously: do biobank institutions have a moral obligation to inform their patients about incidental health findings? \/ Christian Lenk -- Beyond the dichotomy of individualism and solidarity: participation in biobank research in Sweden and Norway \/ Katharina Beier -- Part 2: The legal regulation of human tissue research -- Law, ethics, and human tissue research : integration or competition? \/ Jos\u00E9 Miola -- Legal paradigms of human tissue \/ Remigius N. Nwabueze -- Research with human biological material and personal data in biobanks: legal and regulatory framework in Switzerland \/ Bianka S. Dorr -- Legal issues surrounding French research-focused biobanks \/ Virginie Commin -- Biobanks: ethical and legal aspects of the collection and storage of human biological material in Italy \/ Antonio G. Spagnolo, Viviana Daloiso, Paola Parente -- How to achieve \'free movement of tissue\' in the EU research area \/ Jasper Bovenberg -- Part 3: Practices -- disciplinary perspectives -- Ethical recommendations for the use of human biological material stored in pathology archives for research purposes \/ Christoph Brochhausen [and others] -- Informed consent when donating cells for the production of human tissue engineered products \/ Leen Trommelmans, Joseph Selling, Kris Dierickx -- The regulation of autologous stem cells in heart repair: comparing the UK and Germany \/ Susanne Weber, Dana Wilson-Kovacs, Christine Hauskeller -- Discovering informed consent: a case study on the practices of informed consent to tissue donation in Austria \/ Milena D. 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<http:\/\/viaf.org\/viaf\/59993203<\/a>> # Christian Lenk<\/span>\n\u00A0\u00A0\u00A0\u00A0a \nschema:Person<\/a> ;\u00A0\u00A0\u00A0\nschema:familyName<\/a> \"Lenk<\/span>\" ;\u00A0\u00A0\u00A0\nschema:givenName<\/a> \"Christian<\/span>\" ;\u00A0\u00A0\u00A0\nschema:name<\/a> \"Christian Lenk<\/span>\" ;\u00A0\u00A0\u00A0\u00A0.\n\n\n<\/div>\n
<http:\/\/worldcat.org\/isbn\/9780199587551<\/a>>\u00A0\u00A0\u00A0\u00A0a \nschema:ProductModel<\/a> ;\u00A0\u00A0\u00A0\nschema:isbn<\/a> \"0199587558<\/span>\" ;\u00A0\u00A0\u00A0\nschema:isbn<\/a> \"9780199587551<\/span>\" ;\u00A0\u00A0\u00A0\u00A0.\n\n\n<\/div>\n
<http:\/\/www.worldcat.org\/title\/-\/oclc\/687700458<\/a>>\u00A0\u00A0\u00A0\u00A0a \ngenont:InformationResource<\/a>, genont:ContentTypeGenericResource<\/a> ;\u00A0\u00A0\u00A0\nschema:about<\/a> <http:\/\/www.worldcat.org\/oclc\/687700458<\/a>> ; # Human tissue research : a European perspective on the ethical and legal challenges<\/span>\n\u00A0\u00A0\u00A0\nschema:dateModified<\/a> \"2019-09-09<\/span>\" ;\u00A0\u00A0\u00A0\nvoid:inDataset<\/a> <http:\/\/purl.oclc.org\/dataset\/WorldCat<\/a>> ;\u00A0\u00A0\u00A0\u00A0.\n\n\n<\/div>\n
<http:\/\/www.worldcat.org\/title\/-\/oclc\/687700458#PublicationEvent\/oxford_oxford_university_press_2011<\/a>>\u00A0\u00A0\u00A0\u00A0a \nschema:PublicationEvent<\/a> ;\u00A0\u00A0\u00A0\nschema:location<\/a> <http:\/\/experiment.worldcat.org\/entity\/work\/data\/757240816#Place\/oxford<\/a>> ; # Oxford<\/span>\n\u00A0\u00A0\u00A0\nschema:organizer<\/a> <http:\/\/experiment.worldcat.org\/entity\/work\/data\/757240816#Agent\/oxford_university_press<\/a>> ; # Oxford University Press<\/span>\n\u00A0\u00A0\u00A0\nschema:startDate<\/a> \"2011<\/span>\" ;\u00A0\u00A0\u00A0\u00A0.\n\n\n<\/div>\n\n

Content-negotiable representations<\/p>\n