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Legalising mitochondrial donation : enacting ethical futures in UK biomedical politics

Author: Rebecca Dimond; Neil Stephens
Publisher: Cham, Switzerland : Palgrave Macmillan, [2018] ©2018
Series: Palgrave pivot.
Edition/Format:   eBook : Document : EnglishView all editions and formats
Summary:

They draw on stakeholder accounts and public documents to explore how patients, professionals, institutions and publics mobilised within `for' and `against' clusters, engaging in extensive  Read more...

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Genre/Form: Electronic books
Additional Physical Format: (OCoLC)1016962650
Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Rebecca Dimond; Neil Stephens
ISBN: 9783319746456 3319746456
OCLC Number: 1029352570
Description: 1 online resource.
Contents: Intro; Contents; Abbreviations; Chapter 1 Mitochondrial Donation and UK Biomedical Politics; Abstract; Mitochondrial Disease and Mitochondrial Donation; The UK Context; Data Collection and Analysis; Theorising Mitochondrial Donation: Sociotechnical Imaginaries and Enacting Ethical Futures; References; Chapter 2 Contesting Mitochondrial Donation: The Cluster For; Abstract; Formation of a Pro-campaign Group; Historical Campaigns and Their Re-use; Professor Doug Turnbull and the Making of a Promissory Agent Progress Educational Trust, the Science Media Centre, and the Role of Semi-independent Charismatic IndividualsReferences; Chapter 3 Contesting Mitochondrial Donation: The Cluster Against; Abstract; Formation of the Against-Cluster; Boundary-work and Alignment Work Within the Against-Cluster; Recognising the Other: How the For- and Against-Clusters Saw Each Other; References; Chapter 4 Policy Work and Legitimacy at the Nuffield Council on Bioethics, the Human Fertilisation and Embryology Authority, and the Department of Health; Abstract Legitimacy and Ethicality at the Nuffield Council on BioethicsContested Representational Politics at the HFEA; Defining Moments for the Department of Health; References; Chapter 5 Campaigning: Contested Meanings, Patient-Families, and Last Minute Labours; Abstract; Contested Terminologies; Patient-Families and the Political Capital of Embodied Suffering; Promissory, Ethical and Bureaucratic Labour of Last Minute Campaigning; References; Chapter 6 The Parliamentary Debates; Abstract; Debating and Voting Across Two Houses; Patient-Families; Slippery Slopes and Three Parent Babies Genetic and Germline ModificationEnacting UK Biomedical Politics; Response to the Vote; References; Chapter 7 Enacting Ethical Futures; Abstract; References; Index
Series Title: Palgrave pivot.
Responsibility: Rebecca Dimond, Neil Stephens.

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