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Parent perspectives on indicators of quality of life and happiness for individuals with ASD including whose responsibility it is to address them

Author: Gloria Martino Satriale
Publisher: Gwynedd Valley, PA : Gwynedd Mercy University, 2018. ©2018
Dissertation: Ed. D. Gwynedd Mercy University 2018
Edition/Format:   Thesis/dissertation : Thesis/dissertation : English
Summary:
Schools and agencies that serve individuals with autism spectrum disorder (ASD) typically focus on traditional teaching targets including academics, adaptive behavior, workplace competencies, as well as social and life skills. An emerging area of focus is the importance of happiness and achieving an overall quality of life (QoL) as the ultimate outcome of education and support services. Although not defined  Read more...
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Details

Genre/Form: Academic theses
Material Type: Thesis/dissertation, Internet resource
Document Type: Book, Internet Resource
All Authors / Contributors: Gloria Martino Satriale
OCLC Number: 1042331257
Notes: Department: School of Graduate and Professional Studies.
Advisor: Jeanmarie Mason, Ed. D.
Description: xiii, 133 pages : illustrations ; 28 cm
Responsibility: by Gloria Martino Satriale.

Abstract:

Schools and agencies that serve individuals with autism spectrum disorder (ASD) typically focus on traditional teaching targets including academics, adaptive behavior, workplace competencies, as well as social and life skills. An emerging area of focus is the importance of happiness and achieving an overall quality of life (QoL) as the ultimate outcome of education and support services. Although not defined operationally, there is a belief among parents and service providers that happiness and an overall QoL is important and should be actively pursued along with the other essential traditional teaching targets. This study examined parent perspectives on indicators of QoL and happiness for individuals with ASD including whose responsibility it is to address them. The purpose of this study was to further the extant research to include information from parents regarding factors they believe are important to obtaining a QoL for their child and to determine whether parents include the happiness of their child as an important factor in an overall QoL. The research instrument consisted of a parent questionnaire that was delivered to the parent participants through an online survey. Several educational institutions and service providers in the Commonwealth of Pennsylvania and State of New Jersey assisted in recruiting interested parents of individuals with autism (ASD) they serve to participate in this study. Results from this study are expected to be useful among education professionals and service providers to gain a deeper understanding regarding the perceptions and priorities of what parents consider important QoL concerns, and the extent to which they believe these QoL concerns should be operationalized as targets for teaching and ultimately be established as goals for formal training in educational and training contexts. Understanding the importance of QoL concerns for parents should heighten attention of educators and service providers to incorporate QoL indices as targets for teaching and prioritize that teaching according to parental priorities. Understanding the priority of parental QoL concerns for their children should contribute to program design in individualized instructional goals.

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