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Sickle cell disease and the social sciences : health, racism and disablement

Author: Simon Dyson
Publisher: Abingdon, Oxon ; New York, NY : Routledge, 2019.
Series: Routledge studies in the sociology of health and illness.
Edition/Format:   eBook : Document : EnglishView all editions and formats
Summary:
Sickle cell disease (SCD) is a severe chronic illness and one of the world's most common genetic conditions, with 400,000 children born annually with the disorder, mainly in Sub-Saharan Africa, India, Brazil, the Middle East and in diasporic African populations in North America and Europe. Biomedical treatments for SCD are increasingly available to the world's affluent populations, while such medical care is  Read more...
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Genre/Form: Electronic books
Additional Physical Format: Print version:
Dyson, Simon.
Sickle cell disease and the social sciences.
Abingdon, Oxon ; New York, NY : Routledge, 2019
(DLC) 2018056906
(OCoLC)1077592634
Material Type: Document, Internet resource
Document Type: Internet Resource, Computer File
All Authors / Contributors: Simon Dyson
ISBN: 9781351580847 1351580841 9781315098685 1315098687 9781351580830 1351580833 9781351580854 135158085X
OCLC Number: 1090812864
Description: 1 online resource (pages)
Contents: Sickle cell and the complications of science --
Why genes are not for sickle cell --
A long history of sickle cell : sickle cell and malaria --
A short history of sickle cell : the twentieth century in the US --
Sickle cell trait and athletics --
Sickle cell and deaths in state contact --
Ethnicity, migration and sickle cell --
Genetic carriers and antenatal screening --
Newborn screening --
SCD and the social model of disability --
Sickle cell and social policy : the case of SCD and schools.
Series Title: Routledge studies in the sociology of health and illness.
Responsibility: Simon Dyson.

Abstract:

Sickle cell disease (SCD) is a severe chronic illness and one of the world's most common genetic conditions, with 400,000 children born annually with the disorder, mainly in Sub-Saharan Africa, India, Brazil, the Middle East and in diasporic African populations in North America and Europe. Biomedical treatments for SCD are increasingly available to the world's affluent populations, while such medical care is available only in attenuated forms in Africa, India and to socio-economically disadvantaged groups in North America and Europe. Often a condition rendered invisible in policy terms because of its problematic association with politically marginalized groups, the social study of sickle cell has been neglected. This illuminating volume explores the challenges and possibilities for developing a social view of sickle cell, and for improving the quality of lives of those living with SCD. Tackling the controversial role of screening and genetics in SCD, the book offers a brief thematic history of approaches to the condition, queries the role of ethnicity and includes a discussion of how the social model of disability can be applied, as well as featuring chapters focusing on athletics, prisons and schools. Bringing together a wide range of original research conducted in the USA, the UK, Ghana and Nigeria, Sickle Cell and the Social Sciences is anchored in the discipline of sociology, but draws upon a diverse range of fields, including public health, anthropology, social policy and disability studies.

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