Unexpected : parenting, prenatal testing, and Down syndrome (Book, 2021) [WorldCat.org]
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Unexpected : parenting, prenatal testing, and Down syndrome

Author: Alison Piepmeier; George Estreich; Rachel Adams
Publisher: New York : New York University Press, [2021]
Edition/Format:   Print book : Biography : EnglishView all editions and formats
Summary:
"What prenatal tests and down syndrome reveal about our reproductive choices. When Alison Piepmeier—scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome—died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off,
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Additional Physical Format: Online version:
Piepmeier, Alison.
Unexpected
New York : New York University Press, [2021]
(DLC) 2020016532
Material Type: Biography
Document Type: Book
All Authors / Contributors: Alison Piepmeier; George Estreich; Rachel Adams
ISBN: 9781479816637 1479816639 9781479879953 1479879959
OCLC Number: 1153071934
Description: xxiv, 171 pages : illustrations ; 23 cm
Contents: "I Wouldn't Change You If I Could": Disability as a Form of Human Diversity --
The Inadequacy of "Choice": Disability, Feminism, and Reproduction --
The Welcome Table --
Saints, Sages, and Victims: Down Syndrome and Parental Narrative --
Accessible Words: Alison Piepmeierand the Boundaries of Disability / George Estreich --
Six Questions on the Special, the Inclusive, and the Universal / Rachel Adams.
Responsibility: Alison Piepmeier, with George Estreich and Rachel Adams.

Abstract:

"What prenatal tests and down syndrome reveal about our reproductive choices. When Alison Piepmeier—scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome—died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today's world. Piepmeier takes us inside her own daughter's life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology is rapidly advancing, Unexpected provides a much-needed perspective on our complex, and frequently troubling, understanding of Down syndrome."--Publisher description.

""Unexpected" explores parenting, prenatal testing, and Down Syndrome"--

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Asks questions such as, what is the line between illness and disability, and how can a parent deal with uncertainties? ... Shares rarely heard stories from parents and prospective parents who have Read more...

 
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